RESTLESS/Chapter 16

Tasmania 2016 Eastern Half ..Tasmania 2016 Western Half ..Jacobs Ladder ..Escaping the cold ..Destination Weipa ..Cobbold Gorge

Tasmania 2016 Eastern Half

Sunrise

We left home mid January to visit friends along the way and in preparation for our three months visit to Tasmania. The Isuzu MUX 4×4 and and Crusader caravan plus two kennels and Health Certificates for the two furry children and a porthole cabin for two and we coughed up $22oo for the Return Fare and that is after getting a subsidy of $875 from the Victorian Government!

Tasmanian 2016 Eastern Half

This will be a roving report for the next three months commencing 12th February 2016.

Loading the car and caravan on the ferry was an adventure in itself with only millimetres to spare each side (or so it seemed). Jude took a seasick pill, the doggies were tranquilised and I had a few beers before sleep. It was a smooth sail by all accounts and a happy event although there are some small negatives. The staff of the Spirit of Tasmania were very attentive and helpful. The service runs twice daily between Melbourne and Devonport for a 12 hour journey in the tourist season.

Day one and we visited the Bass Strait Maritime Museum which has an excellent historical display of things maritime. Of special interest is a deep sea diving suit worn by Judith’s Grandfather, J.E (Johnno) Johnstone. In 1938 Johnno walked 43km underwater on the floor of the ocean in Bass Strait looking for a break in the telecommunications cable. He had radio contact with the ship above, the ‘Julie Burgess’ and when he found the fault he said that he could not describe the problem and would need a camera. He and others then set about designing and making what is believed to be the first underwater camera in Australia.

Devonport is a quaint little town in the style of the 1950’s to 70’s housing with some very ornate large houses obviously built by those who made it good in this pioneering town. Set either side of the Mersey River it is the focal point of the Bass Straight Ferry connecting tourists, travellers and business with the mainland of Australia. The business centre is spread over the steep hills on the western bank of the Mersey River. Traffic lights and parking meters are the order of the council. We were miffed, however, at the $1.80 hour parking cost. Either you carry a lot of change with you or lose 20% of your $2 coin. Parking areas close to the city precinct also carry a charge but there is always Maccas for a free park next to the Information Centre!

We ventured out to various touristy venues making chocolates, cheese, berries and ice cream.  The businesses are very well organised to cater for tourism and we only drove about 80km there and back. The countryside is very green and undulating, with produce fields, cattle, sheep and timber forests. Wild Blackberries grow by the side of the road.

Narrow roads

Narrow roads

Railton is a town where the residents excel in Topiary and some stunning examples are seen here

The town of Sheffield sports the name of Mural Capital as there are dozens of great murals depicting various country scenes. When the town was in decline the residents came up with the idea of creating murals on the walls of buildings. The result was stunning.

 

The Promised Land Maze and Village is a hoot and the wit displayed is very good. After walking around and looking at most of the creations we settled for Pancakes and topping and ate too much.

The road then took us around Mount Rolland and a twisty drive to Trowunna Wildlife Park where we saw our first ever Tasmanian Devil. Cute little things they are but can bite you severely.

Overcast, windy with lashings of rain. That was today 15th February.

In an attempt to get to Point Sorrel I had to reverse the caravan about 500 metres to be able to turn around as I found 3 locked gates and nowhere to go. The upside to this was Jude picking Blackberries whilst I was twisting and turning in reverse mode…Ha!

What looked like small hamlets on the map turned out to be the ultimate beach side properties and home to the wealthy citizens of the north.

We visited Hawley Beach, Port Sorrel and Squeaking Point. Then we took a backroad to Beaconsfield and the MUX was chugging away in 2nd gear to get over the hills. At almost every end point today I had to negotiate a very tight U turn. On top of that the roads are narrow!

We called in at Clarence Point and Beauty Point in the Tamar Valley and ended up in a caravan park at Green Beach at $22pn.

 

At Beauty Point on the Tamar Estuary, a special wharf houses two buildings. In one building is a commercial enterprises breeding Sea Horses which are exported world wide. The other building houses live displays of Monotremes, being the Platypus and the Echidna. Tours of both delighted us both.


The following day Jude did some shopping at Beaconsfield while I minded the dogs. We parked in an open area on the grass. I had the back of the car open and the next minute a voice called out Sir, please take control pf your dog!” An elderly lady walked past with her beautiful Samoyed dog and Blaise was bristled up protecting me! I took control and had a nice chat to her
Then we drove towards Georgetown over the Batman Bridge which spans the Tamar River. We had prearranged to meet a young bloke along the way to deliver a painting to him from our neighbour up the road in Peterborough. This happened and while we were waiting at the pre-arranged meeting place Jude picked some Blackberries. Then we drove on to George Town and as far as Lower Head Lighthouse and looked at the pretty houses and scenery along the riverbanks.
I had noticed that the MU-X had used a little bit of oil and called into the only service station I could find and asked if they had one litre to sell me. They only had 5 litre containers or a 20 litre drum. They agreed to sell me a litre but only had an old milk bottle for a container and so it happened. Then we went on to visit old friends who had moved to George Town and had a cuppa with them and spent an hour or so nattering to them.

Our camp for the night was at Blacks Lagoon which wasn’t all that lash but we managed to find a flat spot at the base of a sandy rise. It was an excellent ball game ground and Blaise drove me nuts. I eventually had to hide the ball as I grew tired. Some locals drove up and around us in a Suzuki and then up a sandy track to the beach. It unsettled me as I thought that they might have been up to no good but we slept well that night after watching MKR on TV
The next morning we went out to look for Waterhouse Lagoon but missed the turn-off. At the entrance to Waterhouse Conservation Park I chatted with a bloke from Queensland who said that there was good camping at Waterhouse Point. The signage was not good and in places non-existent. Some parks workers were on the job fixing signs. I chatted to them about me being able to turn the van around at the end of the track. They said we could. We looked at west Waterhouse Point, Ransom Beach and had a tight turn around in one. All the camp sites are fenced and not all close to the beach. Judith had to walk ahead with the two way radio to see if sites were suitable. Eventually we found an ideal site at east Waterhouse Point (Casuarina Hill) that was close to the beach and made camp for a few days.
It was an excellent camp. We had privacy along the fence line and had neighbours for two of the three days but only overnighters. Someone had left a pile of wood along the fence and that and a little bit of our wood saw us through for three nights.

Boiling the Billy

Boiling the Billy

Beach access

Beach access

 

 

 

 

 

 

 

 

 

 

We had endless ball games on the beach with Blaise and even old Jeddah became more lively and came down to the beach a few times. Jude played with her adult colouring in books and we both read books acquired from somewhere. A local wallaby grazed along the fence but Blaise chased it a few times but could not proceed beyond the fence. I struggled up and down to the beach with the walker and eventually found out that if I pushed it in reverse where the front wheels are rigid I could negotiate the sand much better. My left Achilles heel still giving me trouble and is painful. The weather was good around 24 each day but we did have a little bit of wind one day. No TV and no phone so we watched DVD’s and listened to mood music. We packed up on Saturday arvo late and with the dogs tucked into bed we went down to the beach for half an hour just two watch the evening colours change and some sea birds flying hastily to their night roosting place

On the road by 8am. Used Low Range 2nd to get up the hills. We had a look at Tomahawk on the beach. Then we refuelled and bought pies at Gladstone before setting off for Petal Point. Pretty green country with lots of cattle kept Blaise going. We stopped to take photos of the wind generators and saw a wombat scurry back to his hole. We got to Petal Point and found a beachfront site. Trouble was the beach was about 500 metres away. We had a snack for lunch, read and coloured in and the dogs wandered around. I noticed that Jeddah fell once whilst walking. We had a snooze and at 5pm doggies got fed. Jeddah’s back legs gave way when she went to eat her supper. After that she kept wandering off. Then she became ill and went and hid in the bushes. We managed to get her out of there and under the van. Then we saw that she was dying and that the end was near. It was cold outside and so we carried her into the van and set her down on her bed and blanket. She died at ten minutes past eight in the evening having lived for 15 years and 83 days. A sad time for us.

The following morning we drove to Scottsdale to the Vet and they took care of having Jeddah cremated. Then we pushed on to Launceston. I put the necessary address in to Tom Tom but it indicated a different route. Not trusting that route I decided to keep to the highway. Wow! What a ride over the ranges. 16km of narrow twists and turns. It took some steady concentration.

We camped at Old Mac’s RV Farm. A pretty spot. $10 per night with water available but no power. Probably 60 sites next to water the headwaters of the Tamar River. Lots of bird-life around. W
Judith went for a ride on the Chairlift over Cataract Gorge and also had close encounter with a Pademelon and some Fairy Wrens

Fairy Wren

Fairy Wren

Chairlift over Cataract Gorge

Chairlift over Cataract Gorge

Then we went shopping for stuff and did a heap of washing at a very modern and fancy Laundomat at a price. Jude was unpreturbed but I thought it was excessive. That took up most of the day. Our run of good weather came to an end when in started raining in the late afternoon.

We managed to hook up before the rain started in earnest. We drove out to Evandale which is a historic town dating back to 1811. We gathered lots of information at the Visitor Centre and then headed to the Tasmanian Gourmet Sauce Company in Evandale where Jude acquired some nice foods.
We had a phone call to say that Jeddah’s ashes were available and so we made for Scottsdale via Lilydale this time and collected them. There was a cost involved. Then we went looking for lunch and found a cafe that had Scallop Pies. We wolfed those down and then took to the road in the rain again. We  managed to find a place to stop to boil the billy for a cuppa and discovered that we had left out plastic step up behind somewhere. Oh well, will have to find a Bunnings somewhere.

We visited Legerwood by accident as I wanted to see if we could get through some mountain roads in the Ringarooma area. Legerwood has the famous chainsaw carvings by Eddie Freeman depicting World War 1 scenes. The trees were going to be detroyed by the council and the small community rallied around and brought the soldiers of that time back to life again through Eddie’s brilliant artistry. We stopped to gather information and to take photos.

Chainsaw art

Chainsaw art

 

At Ringarooma there were No Dogs signs and so we beat a retreat from there. I asked the Postmaster about the mountain roads for caravans and he reckoned it would not be an issue but that there were rough places. As it was raining I thought it better not to attempt the roads today and we started to make our way to Weldborough on the highway, to camp there for the night. At Derby however we saw some vans parked down by the Cascade River and discovered a Free Camp and dogs allowed. And so here we are camped right on the river. The rain continues and we are parked on hard grass. Tomorrow we won’t be in a hurry, though, as we hope to look around Derby which is the capital of The Tin Dragon Trail

Nothing much happened today. It was a cold, misty, rainy day. Jude went for a walk through town. I did some computer work and played with Blaise, the dog. Late afternoon we had lots of laughs during Happy Hour with neighbours.

St Helens on the east coast of Tasmania is a beautiful place with a nice bay, irridescent waters and pure white beaches. A twisty road leads from Derby to this place and you have to keep your wits about you whilst snaking around the corners’. A fallen tree across the highway livened things up for a bit with Jude up front on a walkie-talkie directing traffic

Tin Dragon Memorial

Tin Dragon Memorial

 

Georges Bay, St Helens

Georges Bay, St Helens

 

 

 

 

 

 

 

 

We had a good camp at Policeman’s Point but the weather turned on us. After two nights we moved to Swimcart Beach on the Bay of Fires coast and managed to get an absolute beachfront site with the surf crashing on the beach less that 50 metres from us.

Policemans Point

Policemans Point

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Our camp at Swimcart Beach north of Binalong Bay was absolute beachfront. Camping facilities there are excellent with space for Caravans and Big Rigs

Sunrise

Sunrise

After routine shopping, washing and gas refills in St Helens we checked out some of the beaches to the south. Our destination was Upper Scamander Forest though and this was a beautiful mountain forest camp at Trout Creek Camp on the Scamander River. Getting in and out was quite hairy towing the van up and down some very steep inclines. The forest tracks were in good repair however.

Scamander River

Scamander River

 

Saturday saw us drive to St Marys where we ate Fudge from the Mt Elephant Fudge and Chocolate Shop and parked with others in a Free Camp at the Golf Course. Judith visited two markets and variety shops in town and found some treasures. Then we drove to the Evercreech Forest north of Fingal and visited the White Knight old growth White Gums which reach up to 90 metres in height

White Knight

White Knight

It was a privilege to stand among the 4 remaining White Knights of an old growth forest

We left the van at St Marys and took the short journey to the Pancake Barn at the top of  Mt Elephant Pass. The road was very narrow and twisty and we were glad the van wasn’t lugging behind. Back at St Marys we packed up, hooked on and tackled St Marys Pass down the range which is just as narrow with many twists and turns. We found a free campsite at Lagoon Beach where we could hear the sea but have no close access to it.

After nine days Free Camping and with four of those days being over cast we ran out of battery power on the morning of the 10th day. We made for Bicheno Caravan Park for a couple of days to wash clothes, replenish supplies and charge all the batteries. Bicheno is a cute little town with a pretty harbour in Waubs Bay. It is known for its Penguin Tours of Little Blue Penguins who come ashore at night to do what Penguins do…whatever that is

Bicheno Blowhole

Bicheno Blowhole

 

 

 

 

 

 

 

 

We did a day trip out to Coles Bay to see what we could without entering a National Park as our furry child is prohibited from entering them. The best part was buying seafood from Freycinet Seafood Farm where we bought a good supply of food.

The following day we did a ‘mammoth’ 175km drive to Primrose Sands where we camped out in the grounds of the RSL for three nights. Along the way we visited Kates Berry Farm just out of Swansea and had scrumptious Scones and Tea at her Just Desserts Cafe which overlooks part of the berry growing pads and the stunning views of Freycinet National Park in the distance.

Just a little distance further south we had a good look at Spiky Bridge which was built by convicts in 1843.

Spiky Bridge

Spiky Bridge

The roads continue to be very narrow and a great deal of concentration is required especially when passing large trucks. I felt pretty drained by the time we arrived at Primrose Sands. Although the name evokes pleasant thoughts we were unimpressed with the shanty town of unregulated building sites

We decided to visit Port Arthur and the Tasman Peninsula without the van and we were glad we did so, as the roads were once again, a challenge. Port Arthur itself was a disappointment for us with their ‘canned’ tourism approach….too organised with queues of people waiting to buy tickets, and frankly, tourism promoting the misery of Port Arthur and its subsequent notoriety is not for me and so we left, but not before being told off for parking in the ‘wrong’ Disabled Parking Bay

Cape Raoul

Cape Raoul

A visit to the Port Arthur Lavender Farm was a delight and whilst I sampled a Lavender Milkshake together with scones, Jude bought Lavender Bags to make the cvar and van smell nice.

Saturday was a non driving day and we read books, worked on the internet and enjoyed fresh Mussels in white wine and thyme over savoury rice, all prepared by Judith, in the van.

In Hobart we camped at the Showgrounds for a couple of nights. A rather bleak place with all manner of RV’s parked in rowa, We caught up with friends in Hobart who gave us a short tour of the inner city.

In Hobart we discovered that all traffic north or southbound have to pass through the  centre of the city.

Judith went to see the art displays of the world renowned gallery MONA (Modern Old and New Art) and she came away with mixed feelings.

We were then invited to camp at Oyster Cove by new friends and we ended up in the middle of a mowed 50 acre property. As we had made a service appointment for our car for the following Monday, this place suited us. From there we explored the region including Bruny Island and Mount Wellington. We did the menial jobs such as shopping and washing and also had the wheels fotated on the car. Then there were Fétes and Markets to attend.

To our great delight we were able to see wild Tasmanian Devils in the early mornings close to our caravan. We could also hear them growling the forest in the day time

Bruny Island Ferry

Bruny Island Ferry

 

 

 

 

 

 

 

 

We took the ferry to Bruny Island and drove most of the tracks. The highlight of the day was seeing an Echidna close-up on the side of the road and driving the forest track from Leenawanna to Adventure Bay. We bought fresh honey, garlic and chocolates on the island

 

We had a 10,000km wheel rotation done on the car in Kingston and a full service by Jackson Isuzu in Hobart. We drove the Channel Hwy around the Snug Tiers Ranges, visited Flowerpot, Grandvewe Sheep Cheese Farm, Verona Sands, Egg and Bacon Junction, and had lunch in Cygnet at The Old Schoolhouse Tea Shoppe. Drove back home along Nicholls Rivulet Road and decided it will be too difficult with van to come this way to Huonville.

The next day it was rainy, cold and windy……shopping…bought clothes, refuelled and measured 8.6/100km.

Jude had a haircut, we had an arvo snooze and then went Woodbridge Fair where Jude bought treasures and some hot food which we ate down at the Marine Discovery Centre, with Blaise looking over our shoulders.

Cold outside today. I had 3 falls today…not good.

We drove up Mt Wellington after Tom Tom took us on a journey via wet roads. After coming down off the mount we visited friends and took Jude to Salamanca Markets. Jude left her phone in our car and asked Security if she could borrow a phone to ring Brigitte to convey a message to me. I picked Jude up and drove home after getting lost again!

Hobart from below the mist line

Hobart from below the mist line

We visited the Kingston Markets, a Car Boot Sale and drove up the Snug Falls Road….drove the top way but found a 45 min walk which was out of the question….drove on with the road until a dead end…..bought Hamburgers at Snug Takeaway and ate them at Snug Beach…then drove ocean road of Oyster Cove to Kettering Harbour then home

After leaving Oyster Cove we made our way to Huonville via Sandfly (love these names). Then Geeveston and Dover via Police Point and then on to the Hastings Thermal Springs.When we got there we found a very small space to turn our rig around but managed after driving over parking bollards. The springs were a let down but we had a nice hot shower after coming out of the waters. We continued driving south and found a good camp site at Gilhams Campground in the Southern Forest Reserve. We only had the road in front of us and then the beach.

The next day we drove as far as Cockle Creek and then into the eastern side of the Southwest National Park after getting permission to take Blaise, the dog, in there.

I walked to the to the Whale Sculpture with great difficulty and then found the camera batteries were flat. So Jude walked back to the car to get the spares and some of them were also flat! I fiddled  with  them and swapped some around and we managed to get photos of the sculpture.

Whale Sculpture

Whale Sculpture

Driving to the sculpture we reached the southernmost vehicle access in Tasmania  and Australia

43 degrees 34 minutes 43.7 seconds SOUTH

146 degrees 54 minutes 04.0 seconds EAST

Back at the van the day turned cold and it started spitting rain…. so we hitched up and left. We called in at the communities of Southport, and then Dover, but their campsites did not attract us. We stopped on Geeveston Town Common for $5 per night with lots of Ball Throwing space……Jude visited the Lolly Shop, I fell over unhitching and grazed some skin off my arm. The van’s batteries were a tad low so we went to bed early and slept like logs

Today we drove to Huonville and did shopping and looking at things and then I went for a ride on the Huon River  Jet Boat…What a blast…another one off the bucket list

Huon Jetboat shooting the rapids

Huon Jetboat shooting the rapids

Easter Friday was a rest day and we lay about reading and Jude cooked a roast

Saturday we went exploring the Tahune Forest and some tracks mentioned in a 4wd Tasmania booklet. Trouble is the booklet is about 10 years out of date. And needless to say we got a tad lost and after taking the Brackenridge Fire Trail which had some extreme washout our adrenalin rush for the day was over and we made for our camp again. Sunday saw us back on the road and after clearing the city traffic in Hobart we motored on to Oatlands where Judith visited the restored Mill and I made camp on the banks of Lake Dulverton. We also caught up with some friends from home who are travelling in Tassie for the next month. The next day we made for Ross which has an Australian Wool Centre and Wool Museum. We bought some quality clothing at a price !

From Ross we took the back roads through Cressy to Deloraine to miss the Easter home traffic. It was a nice sunny day and the road, which was narrow as usual, wended its way across the green pastures of the midlands

Midlands

Midlands

Morning mist Meander River

Morning mist Meander River

 

 

 

 

 

 

 

 

 

Once in Deloraine we made camp on the banks of the Meander River in this picturesque town. The next day we caught up with a long lost cousin for coffees, cakes and lots of chatting

Having found out from our cousin Susan that another cousin lives in the area we went hunting the following day and found where he lives. We will catch up with him on the way back. Then we went to the Honey Shop at Chudleigh. Got in just before a busload of Japanese Tourists arrived.

Then Tom Tom decided to take us on a deviated course to the town of Sheffield. No signage and no name to this mini pass but I was down to 1st gear chugging over the top. It was long and very steep. Whew!!

The Sheffield Mural Painting Competition was on and we had a tour of the wonderful art that the artists portrayed. Had lunch at the Blacksmith Gallery Café

We were going to stay in the Free Camp at Sheffield but as the sun was shining so nicely we kept on heading north and found a caravan park at $23 per night right on the beachfront

Turners Beach is our home for a few days. We will explore the area and then slowly keep on heading west until we run out of road

Turners Beach

Turners Beach

 

Tasmania 2016 Western Half

Halfway through our Tasmania holiday. 6 weeks down and 6 to go

Camped at Turners Beach in Caravan Park run by Lions Service Club

Drove to Burnie via Penguin along some of the shoreline but access is difficult as a rail line and wild scrub stops frequent access. No beaches either, just rocks

On the way home we took to the country roads again and managed to find some steep pinches again. Getting down to Gunns Plains, pictured below was something else. Pleased we did not bring the van this way

Gunn's Plains

Gunns Plains

Dairy cows

Dairy cows

 

 

 

 

 

 

 

 

Jude visited the Michelangelo Exhibition at the Burnie Regional Art Gallery. We had lunch with friends at Workers Gallery which is a magnificent building right on the foreshore of Burnie. It facilitates artists in residence and also has a shop and restaurant.

On the way back to Turners Beach we drove into the hinterland via Gunns Plains and a very steep downhill

The next day we drove out to Leven Gorge. It is a 20 minute walk to the apex of the gorge so we gave that a miss. It was cold outside. We drove further down road and then along a narrow mountain  track skirting the Leven River but eventually turned around. We saw a Tasmanian Devil …it disappeared into the undergrowth after running across the road

Autumn is upon us and its getting colder

Leven Gorge

Leven Gorge

Our next adventure took us to Yolla, about 15km south of Burnie, where we went looking for long lost relatives in the cemetery. We found Judith’s Great Aunt Catherine who was buried there in 1931 at the age of 45. We then went looking for her husbands grave  in the Old Cemetery in Wynyard but could not find his grave. Jude managed to take in a market and we went exploring up the Table Cape which is the headland which juts out into the sea north of Wynyard. We made camp at beautiful Boat Harbour for the night quite close to the sea with tow or three other free campers. Did I say it was cold?

I woke  in the early hours to start worrying about getting back up the steep hill at Boat Habour but the Isuzu climbed it in second gear without much strain. We visited a number of beaches from there to the west but settled for Stanley Beach and found a site in the caravan park close-by. The day was hot and cold. We read and Jude cooked with the Baby Q. I had to play numerous ball games with the dog.

Stanley Beach

Stanley Beach

Tuesday

Camped at Stanley…..did Tourist Drive in morning and found other free campsites. Drove to Smithton and did some shopping. Then we drove towards Woolnorth and stopped at the end of the bitumen and turned around. Drove to Marrawah  after reading all about Woolnorth and the Van Diemen’s  Land Company.

Van Diemen's Land Co

Van Diemen’s Land Co

The wind was blowing a gale at Green’s Beach but 100 metres back from the beach there was some shelter and so we parked up…… And decided to stay for the rest of the day.  Read some history of Aboriginal Tasmania and the Mt Cameron West petroglyphs. Going to look for them but will unhitch van.

The road to Marrawah

The road to Marrawah

Splendid Wren

Splendid Wren

 

Wednesday

Plurry cold. Decided to give petroglyphs a miss in the morning. Maybe next time. My brain wants to do it but my body is not up to it. The Splendid Wrens came for a visit and one hopped up on the step. We drove to Arthur River and the Edge of the world. And it was bloody freezing. Jude went on to take photos

Edge of the World

Edge of the World

Arthur River Mouth

Arthur River Mouth

 

 

 

 

T

Then on to The Tarkine and saw old growth forests, new growth forests and burnt forests. One needs to go on specialist tours to see the real Tarkine, I think. It is a special place. Tarkine is pronounced ‘Tar-keen-knee’ by the local Aboriginal clan who hunted in the forests before the invasion of the island by the British in 1803

Julius River Tarkine

Julius River Tarkine

An interesting idea  seems to work to scare Tasmanian Devils away from the road thus saving them from becoming roadkill

Devils grid

Devils grid

We drove back to Smithton to refuel and camped at West Esplanade under the spotlights. Cold with showers of rain. The following morning we filled up with water at a designated tap before setting off again

It was a beautiful clear morning and with great river reflections on the Duck Estuary.

We drove back out past the Tarkine this time, and then skirted it by driving the Pieman and Long Plain roads. Some very steep sections were encountered and it seemed that there were 5 bends in every kilometre for the 200 we drove this day

Tree Ferns

Tree Ferns

Burnt forest

Burnt forest

 

Stopped for lunch at Corinna and watched the ferry operating.

Pieman Ferry

Pieman Ferry

 

 

 

 

 

 

 

After lunch we had a close encounter with a truck and a motorcyclist on the wrong side of the road. Drove on over hills and dales and bends and  camped at Waratah Council Caravan Park. It was wet. Tried camping on the grass but it was a slight rise and even 4×4 couldn’t get us up it was so slippery. So we pushed in on another site and stopped. Bitterly cold.

We were going to stay two nights but decided to push on.

More winding roads. Stopped at Tullah and bought lovely wooden bowl. Info place at Rosebery was closed but we gathered that Montezuma Falls was out of our reach. Pretty town. On to Zeehan. Looked at museum for info. Camping area didn’t excite us and we pushed on over even more hills to Strahan which is set on Macquarie Bay. A very beautiful town. It was raining…thetown reminded us of Coles Bay…sort of upmarketish.

Camped at Ocean Beach. Rough night. Howling gales shook the van. Shearwaters nest there.

Wild Southern Ocean

Wild Southern Ocean

Shearwater breeding grounds

Shearwater breeding grounds

 

 

 

 

 

 

 

 

Left early for Queenstown over more hills and thick forests.

Queenstown Main Street

Queenstown Main Street

 

Did our washing there and refuelled and then came up THE CLIMB out of Queenstown. We made it in 2nd gear even though it was an extreme climb. Downhill was 1st gear. Saw beautiful water fall from overnight rains. Queenstown town buildings uniquely 1890’s era. Saw lots of older people running businesses and even old people walking the steep streets of the town.Town common very stark from all the mining. We stopped at Lake Burbury in the Thureax Hills. Lake Burbury is the biggest hydro electric dam in Tasmania 4km off the highway and put the awning out. Sun, wind, rain, cold. Put the awning in…played ball. Watched Julie and Julia movie. Sporadic rain and windgusts through the night

The climb

The climb

Sunday….A wet misty morning. We drove on to Derwent Bridge and The Wall. The latter was awesome to say the least. We spent about two hours there.

Then we took to the road again via Miena and Interlaken, backroads to say the least, seeing The Great Lake, Lake Sorell and others to Oatlands. The rain had stopped by now but the wind did not let up. Along the way we stopped on the side of the road and as Jude got out she came face to face with a Tasmanian Devil. I saw it too before it disappeared into the scrub

What struck me most this afternoon was the waste of timber felled during a different era. White man has been very destructive on this island

Monday saw use meander on to Ross once again and marvel at the bridge built by convict labour and completed in 1836. It spans the Macquarie River

Bridge at Ross

Bridge at Ross

Then we indulged ourselves in wool garments at the Tasmanian Wool Centre.

The road now took us to Campbell Town, Avoca, Fingal and back to St Marys where camped for the night at the Recreation Reserve. The sun was out for the first time in a week and we soaked it in.

The following day we made it back to Swimcart Beach on The Bay of Fires narrowly avoiding getting tangled up in Targa Tasmania. Some of the cars were awesome

Swimcart camp

Swimcart camp

 

 

 

 

Jacobs Ladder 2016

Having driven to most of the ‘bucket list’ places in Tasmania there still remained a few places to go where we have been excluded from as we have our ‘Furry Child’ travelling with us. So whilst camped at ‘Old Mac’s Campground’ in Launceston,  I took the opportunity to drive out to the ski fields’ iconic road in the Ben Lomond Mountain Range within the National Park with the same name. The highest point of the range is Legges Tor, rather unimposing at 1572 metres above sea level. One of the Aboriginal name interpretations is Toorbunna and though the meaning is obscure it may mean Rain Walk. Ben Lomond National Park protects around 220 alpine plant species. Bennett’s Wallabies, Wombats and Pademelons are in abundance while Eastern Quolls inhabit the Ski Village in winter, no doubt living on what humans discard

It as an exhilarating morning drive and to breathe in the crisp, fresh air at the top of Jacobs Ladder was absolutely great!

 

(click on Thumbnail photos to enlarge them)

Uphill forest drive

Uphill forest drive

Start of climb

Start of climb

And up

And up

And up

And up

And there - Jacobs Ladder

And there – Jacobs Ladder

North Esk Valley

North Esk Valley

Rhiolite

Rhiolite

Scree

Scree

Clear air

Clear air

Going down

Going down

And down

And down

 

 

 

 

 

 

Cancer

Back home at Peterborough in May of 2016 I noticed blood in the toilet bowl after having a pee and I immediately contacted our local clinic and gave a sample for analysis. And this is where the story about my cancer comes in.

My Doctor, a German born native with a strong accent and a rather brusque but to the point bedside manner, just said “You have cancer” It struck me like a thunderbolt. After all my niggly ailments over the years I was not expecting this.

An appointment was made with a Urologist in Adelaide and within ten days, which is quick by country standards, and off I went to visit him. It seemed however that all he wanted to talk about was fishing, which is not a favourite subject with me but he said that he would refer me to a specialist at the Lyell McEwin Hospital in Elizabethvale and would mark it as Urgent. When I asked how long ‘Urgent’ was at the Lyell McEwin, he replied “Oh, two to three months”. And this set the scene for the next half year and more.

We decided that waiting around for that length of time, worrying about what is going to happen next was a waste of time and so we packed the caravan and headed for Far North Queensland and Cape York. At Eromanga in Western Queensland I switched my phone on to make a call and received a call soon after. It was my Doctors who wanted to see me. When I told her where I was she was most indignant that I could not do this but I insisted that there was nothing to gain by sitting around waiting for a call. Three months later we were back home again to start the rounds of doctors appointments and procedure that I had to endure

To put all of these appointments into perspective I need to tell you that we live 230 kilometres from the hospital

 

Escaping the cold 2016

Throughout life we are forever escaping from something. The older one gets the more susceptible our bodies become to the vagaries of the weather. Trying to find the best weather, however, is normally a journey of some thousands of kilometres in this vast island continent.

We lived in harmony with the weather in Darwin until we arrived to our mid 50’s and then the humidity started to wear us down. And so, being free spirits, we took to the road and after five years on the road, on a warm November day, we bought a house in a small rural village in South Australia. We blindly shut out the possibility of what colder weather might do us when the winter months arrived. Lying 540 metres above sea level and in a temperate zone in the Flinders Valley Complex, our winter temps hit a low minus 10 one year. So to escape these extremes we endeavoured to take off for the winter to warmer climes. Unfortunately around about the start of winter ‘Murphy’ makes his appearance in various forms but health issues. We are forever getting colds, rotten teeth or arthritic issues. Mechanical failures also loom into the picture and on 2015 we only escaped at the beginning of August. This year we have expedited troubles and have managed to escape mid June.

We planned to leave on the Monday but got so excited and wound up about taking off that we hit the road after lunch on Sunday. Our first camp at Mingary Siding was about 300 metres from the Barrier Highway in the rail corridor and in a spot which prickle free. It was thought and we were indoors before sunset. That night we managed to wear three layers of clothes under the doona with a warm Kelpie on top. The wind dropped, we slept well as the traffic died down after 9pm and woke at daylight with a layer of ice over the car and van

Heading north out of Broken Hill on the Silver City Highway the greenery was akin to that of Tasmania after some good rainfall recently. The Patchwork Road is being patched with more bitumen sections on the way to Tibooburra. By 3.30 we had  had enough of driving and found a pebbly campsite at the intersection with the Cobham Road to White Cliffs.

A short time after setting up camp we had a visitation by a family of Emu teenagers and their inquisitiveness and Blaise’s Camp Guard duties were quite funny. She is very obedient though as we called her back from potential hurt. We didn’t light a fire as there was a strong breeze about which increased intensity during the night. We were able to sleep by only wearing two layers of clothes.

Visitors

Visitors

 

 

 

 

 

 

 

Day 3. We were on the road by 9am the next morning. Saw Kangaroos and Emu’s early. Then Lake Bullieu. Could have camped there if we had driven just a few kilometres further. Just a short distance further north and we came across some bush artwork

 

 

Tool Tree

Tool Tree

Little Tool Tree

Little Tool Tree

We loved the Tool Tree and Little Tool Tree and an old satellite dish which stated Watch the Road!
At Tibooburra we refuelled @ $1.36l and went on our way again.
Tibooburra

Tibooburra

A slow trip today but we managed 350km. Silver City Hwy is sealed in places up to Tibooburra and then the
bulldust patches through Sturt NP have been sealed as well, making the drive more pleasant. Once through the Dog Fence at Warri Gate, we stopped for lunch and also had a quick ball game which resulted in a left leg limp.

Gate Opener

Gate Opener

The road was good overall but with some sneaky washouts. The roadside vegetation was very green with new growth, luxuriant in places. There was a bit of water lying about in gullies and some creeks. I managed to drive through some mud much to Jude’s horror. We got to Noccundra Waterhole in the late afternoon to find about 20 rigs parked there. We were lucky to find a good spot in no time and set up camp. It was definitely warmer here but the mossies were bad and chased us indoors as the sun set.

Noccundra Waterhole

Noccundra Waterhole

Day 4. Shorts and T shirt day. Fiddled with van brakes as there was a clunking noise. It went away. Then I used the Jockey Wheel to raise the car higher so that I could fit under to reposition and cable-tie the Diff Breather, which had come adrift. Sorted out the front of the van for wood storage and took wood box out of back of car for more space for Blaise. Jude cooked a great curry on the fire and we drank copious amounts of red wine on a late lunch day. Then we all had a sleep. The Yabbie Net caught three minute Yabbies which we threw back. When the mossies chased us inside we went to turn the radio on but it refused to co-operate. Then I stuck a CD in it and could not retrieve it. Decided radio is a waste of time and will buy a free standing one
Day 5. Light cloud about. Up at 6 for coffee and doggy outs. Then we got underway towards Eromanga.
Once there we bought pies at the hotel and then got the key for the museum and a bus load of tourists came in too. Diesel was $1.38 at the pump where they make it. Got in to Quilpie and the last site in the caravan park. Had a relax. Refuelled and bought fuel at $1.48. Bought an Anderson plug at a price and replaced the broken one on the van. Bubbled up in the spa in the park which was quite therapeutic.
Day 6. Jude drove some of the way getting experience. Stopped for a microwaved pie at Cooladdie Roadhouse and then 0n to Charleville for internet, food and grog supplies. We boiled the billy at Morven and later we found a good campsite at the Neil Turner Weir at Mitchell with many others. Jude cooked Kangaroo Stew on an open fire and we used up most of our meagre wood supplies. The dry Gidgea wood burned well.
Day 7. Rest day. Expecting rain later in the day. Lay about doing as little as possible. It became progressively cooler and bylate afternoon spots of rain made us pack up and go inside. The rain started with sproradic showers and then it rained heavily through the night
Day 8. Got out of the van this morning and the blacksoil squelched up through my toes
Jude carried Blaise to the car so as not to get mud everywhere. Then she walked up front with the handheld radio and tested the track for mud depth. We only had about 100metres to the bitumen
Low Range…….. and I try a gentle light footed approach. All 4 wheels spin and the van stays motionless and the MUX slews sideways. Then the right front wheel in Traction Control grabs a piece of grass and I manage to get the van moving. We get traction and then make it through a big puddle of water to safety. Phew!!!!!!!

We met a mob of cattle in the Long Paddock on the way to Roma

Cattle on the road

Cattle on the road

 

 

We camped at the Big Rig Park. Quite a squeezed reverse park-in but I did it with colours on a first attempt.
Drove around town doing shopping and fuel ups.

Day 9. MUX is having its 20,000km service at Harvey Black Isuzu. We are spending time reading and surfing the net

Day 10. And we are back on the road heading east to Chinchilla via Miles. The road is lumpy and bumpy and there are still road works going on 5 years after we found them whilst travelling home. After a spot of lunch in a park we took a minor backroad to Wondai. This road, was in place, the worse surface sealed road we had driven on in many years. It was built over black soil plains and the undersoil has subsided causing very large sunken sections. We got as far as Stuart River where there is a large free campsite with no facilities. The traffic stopped around 9pm and started again around 5am, giving us a good chance to sleep.

Day 11. Wondai, Ban Ban Springs, Biggenden, Childers and finally Bundaberg where we parked up in a friends yard next to a busy highway. The day time temperature is 24C and I soon discarded my winter clothes for shorts, a T-shirt and sandals. We will hang around here for about 2 weeks

Throughout life we are forever escaping from something. The older one gets the more susceptible our bodies become to the vagaries of the weather. Trying to find the best weather, however, is normally a journey of some thousands of kilometres in this vast island continent.
We lived in harmony with the weather in Darwin until we arrived to our mid 50’s and then the humidity started to wear us down. And so, being free spirits, we took to the road and after five years on the road, on a warm November day, we bought a house in a small rural village in South Australia. We blindly shut out the possibility of what colder weather might do us when the winter months arrived. Lying 540 metres above sea level and in a temperate zone in the Flinders Valley Complex, our winter temps hit a low minus 10 one year. So to escape these extremes we endeavoured to take off for the winter to warmer climes. Unfortunately, around about the start of winter ‘Murphy’ makes his appearance in various forms but health issues. We are forever getting colds, rotten teeth or arthritic issues. Mechanical failures also loom into the picture and on 2015 we only escaped at the beginning of August. This year we have expedited troubles and have managed to escape mid-June.
We planned to leave on the Monday but got so excited and wound up about taking off that we hit the road after lunch on Sunday. Our first camp at Mingary Siding was about 300 metres from the Barrier Highway in the rail corridor and in a spot which prickle free. It was thought and we were indoors before sunset. That night we managed to wear three layers of clothes under the doona with a warm Kelpie on top. The wind dropped, we slept well as the traffic died down after 9pm and woke at daylight with a layer of ice over the car and van
Heading north out of Broken Hill on the Silver City Highway the greenery was akin to that of Tasmania after some good rainfall recently. The Patchwork Road is being patched with more bitumen sections on the way to Tibooburra. By 3.30 we had had enough of driving and found a pebbly campsite at the intersection with the Cobham Road to White Cliffs.
A short time after setting up camp we had a visitation by a family of Emu teenagers and their inquisitiveness and Blaise’s Camp Guard duties were quite funny. She is very obedient though as we called her back from potential hurt. We didn’t light a fire as there was a strong breeze about which increased intensity during the night. We were able to sleep by only wearing two layers of clothes.
Day 3. We were on the road by 9am the next morning. Saw Kangaroos and Emu’s early. Then Lake Bullieu. Could have camped there if we had driven just a few kilometres further. Just a short distance further north and we came across some bush artwork
We loved the Tool Tree and Little Tool Tree and an old satellite dish which stated Watch the Road!
At Tibooburra we refuelled @ $1.36l and went on our way again.
A slow trip today but we managed 350km. Silver City Hwy is sealed in places up to Tibooburra and then the
bulldust patches through Sturt NP have been sealed as well, making the drive more pleasant. Once through the Dog Fence at Warri Gate, we stopped for lunch and also had a quick ball game which resulted in a left leg limp.
The road was good overall but with some sneaky washouts. The roadside vegetation was very green with new growth, luxuriant in places. There was a bit of water lying about in gullies and some creeks. I managed to drive through some mud much to Jude’s horror. We got to Noccundra Waterhole in the late afternoon to find about 20 rigs parked there. We were lucky to find a good spot in no time and set up camp. It was definitely warmer here but the mossies were bad and chased us indoors as the sun set.
Day 4. Shorts and T shirt day. Fiddled with van brakes as there was a clunking noise. It went away. Then I used the Jockey Wheel to raise the car higher so that I could fit under to reposition and cable-tie the Diff Breather, which had come adrift. Sorted out the front of the van for wood storage and took wood box out of back of car for more space for Blaise. Jude cooked a great curry on the fire and we drank copious amounts of red wine on a late lunch day. Then we all had a sleep. The Yabbie Net caught three minute Yabbies which we threw back. When the mossies chased us inside we went to turn the radio on but it refused to co-operate. Then I stuck a CD in it and could not retrieve it. Decided radio is a waste of time and will buy a free standing one
Day 5. Light cloud about. Up at 6 for coffee and doggy outs. Then we got underway towards Eromanga.
Once there we bought pies at the hotel and then got the key for the museum and a bus load of tourists came in too. Diesel was $1.38 at the pump where they make it. Got in to Quilpie and the last site in the caravan park. Had a relax. Refuelled and bought fuel at $1.48. Bought an Anderson plug at a price and replaced the broken one on the van. Bubbled up in the spa in the park which was quite therapeutic.
Day 6. Jude drove some of the way getting experience. Stopped for a microwaved pie at Cooladdie Roadhouse and then 0n to Charleville for internet, food and grog supplies. We boiled the billy at Morven and later we found a good campsite at the Neil Turner Weir at Mitchell with many others. Jude cooked Kangaroo Stew on an open fire and we used up most of our meagre wood supplies. The dry Gidgea wood burned well.
Day 7. Rest day. Expecting rain later in the day. Lay about doing as little as possible. It became progressively cooler and bylate afternoon spots of rain made us pack up and go inside. The rain started with sproradic showers and then it rained heavily through the night
Day 8. Got out of the van this morning and the blacksoil squelched up through my toes
Jude carried Blaise to the car so as not to get mud everywhere. Then she walked up front with the handheld radio and tested the track for mud depth. We only had about 100metres to the bitumen
Low Range…….. and I try a gentle light footed approach. All 4 wheels spin and the van stays motionless and the MUX slews sideways. Then the right front wheel in Traction Control grabs a piece of grass and I manage to get the van moving. We get traction and then make it through a big puddle of water to safety. Phew!!!!!!!
We met a mob of cattle in the Long Paddock on the way to Roma
We camped at the Big Rig Park. Quite a squeezed reverse park-in but I did it with colours on a first attempt.
Drove around town doing shopping and fuel ups.
Day 9. MUX is having its 20,000km service at Harvey Black Isuzu. We are spending time reading and surfing the net
Day 10. And we are back on the road heading east to Chinchilla via Miles. The road is lumpy and bumpy and there are still road works going on 5 years after we found them whilst travelling home. After a spot of lunch in a park we took a minor backroad to Wondai. This road, was in place, the worse surface sealed road we had driven on in many years. It was built over black soil plains and the undersoil has subsided causing very large sunken sections. We got as far as Stuart River where there is a large free campsite with no facilities. The traffic stopped around 9pm and started again around 5am, giving us a good chance to sleep.
Day 11. Wondai, Ban Ban Springs, Biggenden, Childers and finally Bundaberg where we parked up in a friend’s yard next to a busy highway. The day time temperature is 24C and I soon discarded my winter clothes for shorts, a T-shirt and sandals. We will hang around here for about 2 weeks

Destination Weipa 2016

Bustard Bay at 1770

Bustard Bay at 1770

 

Having done all the necessary jobs and visitations as far as Bundaberg, we set off on a new adventure to visit new places and ones we had been to long ago. New roads are the order of the day but unfortunately they are built on the foundations of the old ones and remain bumpy and uneven.

We made it to Winfield, a small enclave of designer built houses for the well off on the banks of Baffle Creek. The creek came up in the 2012 flood and drowned nearby houses up to two metres in depth/ Our friends had a big job ahead in the restoration and got through the disaster with colours. Nearby there are thousands of Macadamia trees owned and operated by an American company. We managed to scrounge some on the windrow which is all part of our hunting and gathering

Macadamia plantations

Macadamia plantations

 

 

 

 

 

 

 

We last visited the Town of 1770 and Agnes Waters some 45 years ago when they were backwater hamlets. Today they look like the ‘Gold Coast’ with rich man’s houses and poor mans caravan parks abounding the valleys and hills and billboard advertising everywhere. We came away saddened and made for Miriamvale as we now needed to refuel the MUX

At the information Centre in Miriamvale we discussed driving over Blackman’s Ridge to the Boyne River Valley. I had driven in before a long while back and there was something about it that I needed to be reminded of. It was the very steep and descent on the other side. Someone asked if I knew what I was doing and I said Yes.
We managed second gear over the range and first gear with brakes on down the steep and narrow incline. We were lucky not to meet other vehicles on the pass as the vehicle coming up the range has right of way

A short way down the valley we turned in to The Discovery Centre Recreation ground where we were able to camp for $10 per night and $5 for power for our length of stay. We took that up as rain was forecast and we needed hrd ground to stop on. The rain came all right and it rained hard until a short while after sunrise. Then it stopped and the sun came out and by midday the grounds had dried.

Ubobo rain

Ubobo rain

We camped here for a couple of days and then edged on to Gracemere on the fringes of Rockhampton via Calliope. Once again the Queensland roads proved to be tricky with almost dangerous dips, railway crossings and rough surface roads. Rockhampton was busy and we went looking for various items and ended up at shopping mall the size of our hometown

We managed to find Markets over the weekend at the Farmers Market at Yeppoon and The Heritage Market in North Rockhampton. Our journey also took us to Rosslyn Harbour, Emu Park and the Singing Ship and Keppel Sands.

The Singing Ship at Emu Park. A well thought out collection of pipes which catch the breezes and then make haunting sounds

Singing Ship

Singing Ship

Yeppoon rising

Yeppoon rising

The development in housing and apartments staggered us somewhat having remembered the places as slow easy-going seaside hamlets and now the scenery has changed into a sphere of resort type enclaves. There are still a few old beach shacks and Queenslander Houses around.

Sunrise Great Keppel Island

Sunrise Great Keppel Island

Leaving Rockhampton on the last day of school holidays saw a busy road. We pulled in to a Driver Reviver Station and had a chat and a coffee with travellers and locals. We spent the night at St Lawrence Campground with other travellers. There was no fee although a sign at the entrance gate said so. The campground is in the Rodeo Grounds and adjacent to the mangrove swamps, and the mosquitoes chased us inside before dark.

Magpie Geese

Magpie Geese

St Lawrence has a history to it when in the 1800’s a Meatworks was established there and meat exported to Brisbane by steamer. It is not known why the endeavour failed.

Drying out

Drying out

Nymboidia

Nymboidia

 

 

 

 

Meatworks

Meatworks

 

Clairview Roadside  Stop has been closed and instead a community caravan park has been extablished. The ablutions and a Craft Centre can still be found at the old site. Clairview attracts fisherman from all over the country.

At Flaggy Rock Railway Siding another community camping area has been established with about 5 acres of manicured lawns and shower and toilets sand other facilities. We decided to stop and found a good site and set up camp. The Kookaburras gave us their morning and evening choruses and the Plovers hung about nearby as they obviously had an egg they were watching. We slacked off and stayed two nights

Flaggy Rock Camp

Flaggy Rock Camp

 

 

Sarina Sugar Mill

Sarina Sugar Mill

 

 

 

 

 

 

 

The next day we drove out to the coast down a number of roads looking for a beach to explore but were thwarted by the ever encroaching signs of suburbia making access to beaches difficult. We managed one very sharp turnaround at Salonika Beach south of Mackay.

Late afternoon we made it to a cane field close to the road next to the General Gordon Hotel at Homebush Locality. The pub owners were friendly, charged us $5 a head, gave us a good feed at a reasonable price and also let us fill our water tank in the morning. Being on a city by-pass road meant that there was little road noise between 9pm and 2am. Thereafter sleep became erratic as cars and trucks coursed the pavement just metres from us. A late afternoon Cane Fire got our interest. It soon died down however.

General Gordon Camp

General Gordon Camp

Cane fire

Cane fire

Being slightly under the weather from sleep deprivation I had a ‘senior moment’ when refuelling the car at a country store in Calen. I had grabbed the wrong fuel hose and realised my mistake immediately but not before putting .8 of a litre of Unleaded fuel in the diesel tank. I then filled the tank with diesel and rang Isuzu on their Hotline for advice. The advice was to have the tank drained and flushed and that they would have someone call on us within the hour. The friendly RACQ man from just up the road came around and after a discussion with him, we decided that the ingress of petrol of less than 1% of the tank capacity would just mix in with the diesel and dissipate. We checked out another two beaches but the same scenario applied. At Proserpine we bought Heartworm tablets for our furry child and then set off for Hideaway Bay on the coast. Jude managed to obtain the very last site in the caravan park and we settled in to sit out the unseasonal rain which was bearing down on us.

Jude did a Craft session with some other touring ladies at the Caravan Park’s Common Room, the following morning. In the afternoon we drove to Dingo Beach, Gloucester Point and parts of Hideaway Bay gaping at the million dollar houses built there. The road to Gloucester Point is not sealed and was very wet and slippery

Saturday morning saw us drive to Airlie Beach so that Jude could visit a Market on the Foreshore. We were utterly stunned by the development that had happened at Airlie over the past 40 odd years. We drove over to Shute Harbour to see the development and pending development in the form of a Parking Garage for tourists to leave their vehicles.  Shying away from the throngs of people and traffic we visited Conway Beach down the coast to find an unrushed , tranquil place with few people about. Nearby Cedar Falls was a sight to see after all the rain.

Conway Beach

Conway Beach

Cedar Falls

Cedar Falls

 

 

 

 

 

 

 

 

 

The following day at Bowen, we marvelled at the wonderful murals before continuing on and finding a  bush camp at Plantation Creek Boatramp, east of Ayr, in the late afternoon. It wasn’t the most exciting place but we were tired and this had to do. After some really heavy rain I moved the rig to a better spot and away from the streaming water.

 

 

 

 

 

 

 

 

 

 

A spot of breakfast at Maccas in Ayr made us resolve to never eat there again. We managed to bypass Townsville and then we called ahead and caught up with an old mate in Ingham for a cuppa. He was in good health and spirits.

This was the week of rain. Driving along the Bruce Highway in the rain wasn’t fun, as trucks would splash huge amounts of water at the windscreen with their rows of wheels.

At Cowley Beach Caravan Park we booked in for a week. Managed to park the van on a cement slab. It was actually the slab that we camped on, way back in 1996. Not much has changed at Cowley Beach over 20 years, There are some new self contained units but the reception office and the ablution blocks still look drab and old. The management is no better. The only consolation is that the beach was only 100 metres from our van. Unfortunately we could not get a beachfront site we had in the past but the one we had would suffice.

We went for a number of drives to wineries, markets and various shops and stores whilst at Cowley Beach. The following Monday we were on the road again, this time heading for the Atherton Tableland.

Apart from the lush jungle vegetation of the far north and the endless fields of sugar cane Bananas and Paw Paws grow in profusion. Apparently three quarters of the total banana production of Australia is grown in the Innisfail area

Bananas

Bananas

A common  native wanderer north of the Sydney and right up into Cape York and the wet tropics is the Brush Turkey or more commonly known as the BushTurkey.

Brush Turkey

Brush Turkey

 

Visiting Mungalli Bio Diverse Dairy and the driving the Waterfalls Tourist Route made for steep uphills and downhills with the caravan in tow and some very tight turn-arounds and especially at Millaa Millaa Falls. The latter was flowing beautifully after the recent unseasonal rains

Millaa Millaa Falls

Millaa Millaa Falls

We stopped at the Millaa Millaa Caravan Park for two nights to let Jude get over a bout of sneezing and coughing, We thought about staying longer and doing some local drives but we had light rain and the site turned into mud. At Malanda we did some shopping for supplies and at Gallo Dairy Farm we bought cheese and chocolates. The next tourist stop was the Coffee Works in Mareeba where a coffee percolator was acquired. We had lunch at Jacques Coffee Plantation,  bought a curio and did a refuel at Mount Molloy and pulled up for the night at Bustard Downs farm. The amenities were good but not suited for disabled people. Each campsite had a lean-to cover and cement slab. But there wasn’t much room for error as we found out the next morning. We had to unhitch and manually swing the van away after I swung the van out too early and touched the steel upright. We got out of that one unscathed and decided that Bustard Downs was more like Bastard Downs

Bustard Downs Camp

Bustard Downs Camp

 

 

 

 

 

We had another early camp at Laura in the grounds owned by the Roadhouse after climbing the ranges and then descending them again. The road from Laura to Musgrave Roadhouse was good but from there on there were some serious corrugations which were unescapable. There are now a number of sealed sections on the Peninsula Developmental Road bringing relief from the rattles at times

 

PDR

PDR

Driving the windrow

Driving the windrow

Our days of rest from driving came at Big Bend of the Coen River. The crystal clear waters of the river invite you to sit there and dream the day away. Excitement however was about to befall us. The cattle station which surrounds the town and town common of Coen were mustering stray cattle. A helicopter, a Stockman on horseback, a Stockman on a Quad bike and two cattle dogs were working hard to get the last bull to co-operate. All this was taking place across the waters from us and about 50metres in distance. The bull then decided to cross the shallow river and came up the embankment on our side and made for us stopping a mere 5 metres from me. I tried to shoo it away but then thought the better of it and herded Jude and Blaise and myself into the caravan. The bull then saw no more antagonists and took off around the back of the van. The stockmen then lassooed it and brought it to the ground. Later in the day a truck  and trailer arrived and the tied up bull was winched on and taken away. We did not learn its fate.

We cooked our meal on the fire and later in the evening our neighbours came over for a chat. The Brown Tree Frogs kept serenading us with their chirping.

 

Nothing much happened the next day and the day after that we drove the last 260km to Weipa. About 160km is gravel road and the rest is sealed. The gravel bits were not too badly corrugated and the road improved markedly after the Y junction where the road splits to Weipa or Cape York.

Dust settles

Dust settles

Tropical jungle

Tropical jungle

 

 

 

 

 

 

 

 

 

There were some seriously deep dips in the road and I drove with great care. We were stopped at the Haul Road by a Boom Gate and a Traffic Light and had to wait about 10 minutes for the Haul Road to clear before we were allowed to cross

Give way !

Give way !

We made it to our site in the caravan park which had easy access to all amenities

Weipa sunset

Weipa sunset

 

To be continued….

 

Cobbold Gorge 2016

I had heard of Cobbold Gorge on a previous visit to Far North Queensland and kept it in mind for a future visit.

Along the way on our journey to include Cobbold Gorge in to our itinerary this year, we stopped for a rest at Mount Garnet Caravan Park

“No way am I going to take my caravan on that awfully corrugated road beyond Georgetown. My mate’s trailer fell apart on that stretch of road” said my neighbour, who parked up next to us. Not that corrugations would worry us much after travelling to Weipa a few weeks back. But with some trepidation we enquired at the Georgetown Information Centre about this ‘horrific’ stretch of road. The answer was almost the same but with some additional information that the corrugated bit was only 14km long. I rang Cobbold Gorge Village  and the receptionist said that the road was corrugated in places but in general OK for caravans and camper trailers. As it turned out, two, hundred metre sections of the 14km stretch, were corrugated. The rest was a breeze. It depends on what level of corrugated roads you have experienced. So much wrong information! The road from Georgetown to the old gold mining town of Forsayth is 42km in length and from there it is 45km of good gravel road to Cobbold Gorge Village. There are a few buildings at Forsayth and a Hotel cum General Store cum Post Office cum fuel outlet. It is also the Terminal for the Savannahlander Train on its weekly journey servicing isolated towns and communities all the way from Cairns.

Frank Edward Cobbold, generally known as FC, was a charismatic character who held vast pastoral holdings in the late Nineteenth Century in this sandstone country of Far North Queensland. Somehow Cobbold Creek, a tributary of the Robinson River, was named after him. Pastoral Families such as the Cobbolds, Corbertt’s, Clark’s and Terry’s have made a living from raising  cattle on the holdings over the past 150 years. The Clark Family, who, like others, emigrated from Europe in the late 1800’s, took up this lease and named it Robin Hood Station, supposedly as it had Sherwood Mining Lease as one neighbour and Forestvale Station as another. Later this station was divided in to three sections and Simon and Gaye Terry and their children became the lease holders of Howlong Station, next to Old Robin Hood and Robinhood itself.

It wasn’t until 1994 that Simon Terry and some fishing mates, bush bashed their way in to this remote gorge, to discover that there was more to it that just a waterhole on Cobbold Creek. Cobbold Gorge was there, hiding in the shadows of the sandstone plains countryThe idea then came about to diversify to tourism to help their cattle holdings survive the droughts and Cobbold Village was created in a resort style of accommodation with ensuite cabins and caravan park facilities.

To my mind the Terry family run a very slick and polished operation with friendly staff and tour guides and all to a fine order. A Camp Kitchen is provided for campers. There are powered and unpowered caravan sites and the Village is Pet Friendly. There is a licenced Bar, quality Restaurant and Infinity Swimming Pool with three levels of temperature. There are submerged stools in the main pool so that you may sit in the water and enjoy a cold drink from the bar. The Village also has disabled access to all facilities.

 

 

 

 

 

 

Ron the Tour Guide

Ron the Tour Guide

From May to October visitation to the Village and Tours to the Gorge take place. There is a morning and a midday tour on a daily basis. Comfortable, air-conditioned four wheel drive coaches ferry the visitors to the gorge. The journey is only 4 kilometres to the gorge over some steep dips and climbs. Each tour tales three hours and the cost is nominal for such a great experience. The first hour of the tour is taken up with a walk up and over the sandstone plain to experience bush tucker, aboriginal folklore and to view into the gorge from the top of the gash in the rocks. The next two hours are taken up by slowly cruising the gorge in electric boats that take up to 10 people. The gorge is only 480 metres in length and 33 metres in heght. It is a relatively young gorge in geological terms and probably no more that 10,000 years old. The creek has not weathered the sandstone very much and that is why it is still only two metres wide in places. The amazing sculptured walls leave you breathless. At one juncture our tpur guide stopped the boast and asked everyone to be quiet and to listen to nature’s symphony orchestra playing the symbals as the water, seeping through cracks in the sandstone fissures, spread over and drips down mosses clinging to the cooler parts of the rock face. Archer fish, Rainbow fish,  a variety of Grunter and Black Bream fish are found in the gorge. There is also a presence of FreshwaterTurtles and Freshwater Crocodiles.

Ashaded terminus

A shaded terminus

Access to the Gorge

Access to the Gorge

 

 

 

 

Large shelter

Large shelter

 

 

 

 

Aboriginal grinding stones

Aboriginal grinding stones

Native Hibiscus

Native Hibiscus

Walking trail

Walking trail

 

 

 

 

 

Top of the Gorge

Top of the Gorge

Entrance to the gorge

Entrance to the gorge

The Gorge

The Gorge

Inner Gorge

Inner Gorge

Outer Gorge

Outer Gorge

Near the end

Near the end

The end

The end

crocodylus johdtonii

crocodylus johnstonii

Freshwater Turtle

Freshwater Turtle

 

 

 

 

 

 

 

 

Living with cancer May 2016 to May 2017 and beyond

But let me start at the beginning.

As a child I was fascinated by the opportunity that I may have to see in the new century. I used to say “Gee, I will be 57 when the year 2000 comes about”. Life went on and I shifted continents and country of allegiance, got married in 1969 and in 1999 we landed in the town where we still live today. We bought a 100 year old sandstone cottage and started to build up our new home after being Grey Nomads for five years. It was at my Mother’s funeral in 1999 that my younger brother said to me “Why are you limping?”. I had not noticed.

This was at the start of my adventure with total knee replacements. By 2002 it became apparent that the two of us would get no sleep in the same bed as I wriggled around  too much trying to get into a position to whilst sleeping so that I could be painless and find some comfort. So I bought my own queen-size bed, we closed our little shop down that we had selling crafty stuff and took up to being on unemployment benefits. A short while later I was awarded a Disability Pension and Judith a spouses living allowance and by 2010 we were both receiving the old age pension from the government.

By some strange coincidence both Judith and I suffered from knee ailments and had both our knees replaced with Titanium steel ones over a period of 10 years. All operations were successful. My left knee which has now been in operation for 14 years, gives me a tweak of pain every now and then and might need some attention in the near future.

Sleeping alone brought benefits like staying up late reading or watching TV.  It was also quiet with no deep snoring sounds to be heard. I also brought a Chemical Portable Toilet into into room, so that it was not a big issue getting up in the middle of the night and stomping down the length of the corridor and through the kitchen and laundry  to the toilet, at the rear of the house. I started sitting to empty my bladder and found that it emptied very well. I know this is not a very manly thing to do but it is definitely a lot cleaner.

This was 2002 and I bought myself a wheelchair as my knees were killing me. This was also the time of the Health Insurance debacle and my Specialist suddenly retired and I had to start all over again. Luckily Adelaide Orthopaedic Specialists were still visiting Port Augusta Hospital and I was able to get my first Total Knee Replacement in the winter of 2003. This brought some relief and I still went down on the list for my next knee replacement and this happened in 2005 also at Port Augusta Hospital, but with a different specialist. By 2006 I was walking well with my staff and by 2007 walking without using my staff.

Life went on and in 2008 I had a Carpal Tunnel operation to my right hand which alleviated the pain and numbness. Then in 2009 I started feeling pain in my left hip and then again in my right hip. I went through the process again of having a Cat-scan done of my Lower Back. The specialist told me that my hips were fine and did not need attention but that I had the onset of Spinal Stenosis and that doctors are loath to operate on someone over the age of 60 as there were too many variables of what could go wrong. At this time I was 66. I was given a variety of prescriptions but mainly relied on Diclofenac and so I slowly but surely lost my ability to walk properly and needed a walking stick to keep my balance right. In 2013 I was in Alice Springs and visiting with Bill and Liz. They had just installed new floor in their house. The floor had a concrete base and a soft padded vinyl type covering. It was very smooth to walk on and I was in my socks when I slipped and fell backwards hitting my head quite hard on the floor. I was a bit dizzy for a few minutes but soon recovered.

A few days late Bill and I and another bloke went camping in the Cleland Hills. s remote part of Central Australia about 500km west of Alice Springs. One morning the frying pan dropped out of my left hand as I tried to pick it up. I immediately thought that I had had a stroke but discounted it later on as my face still held its position. The following day I was weak when we went exploring. By the time I got home again I started experiencing hot flushes with my skin feeling like I have been sunburned. I went to see our local physiotherapist and had acupuncture and massages, all to no avail. While massages were good I returned back to the old position by the late afternoon.

I started seeing Doctors at our local clinic and ended up seeing a different Locum every time. My condition became steadily worse and I asked if I could get a referral to a specialist in Adelaide this was done on 4th July 2014. In January of 2017 I was summarily taken off the list with a statement that my condition was not bad enough to be worthy to be seen by a specialist. In the mean time my condition started deteriorating by the day. I was dragging my left foot, tripping up on objects and falling, mainly to my left side. A Doctor friend of mine, in Melbourne, became alarmed when he saw how bad my mobility was and arranged for me to have an MRI done and then three months later, when we returned from a visit to Tasmania, to see a Neurosurgeon in Melbourne. This bloke was kind and caring and said that I did not need an operation but would benefit from seeing a Neurologist and he suggested a friend of his in Adelaide. That eventually happened in September of 2016 and is ongoing at the moment. So now I was taking 750mg Lyrica twice a day, 1000mg Naproxen once a day, 100mg Tramadol twice a day and Sozol once every second day. This effectively cuts my back pain out with no side effects.

Back home in May of 2016 I noticed blood in the toilet bowl after having a pee and I immediately contacted our local clinic and gave a sample for analysis. And this is where the story about my cancer comes in.

My Doctor, a German born native with a strong accent and a rather brusque but to the point bedside manner, just said “You have cancer” It struck me like a thunderbolt. After all my niggly ailments over the years I was not expecting this.

An appointment was made with a Urologist in Adelaide and within ten days, which is quick by country standards, and off I went to visit him. It seemed however that all he wanted to talk about was fishing, which is not a favourite subject with me but he said that he would refer me to a specialist at the Lyell McEwin Hospital in Elizabethvale and would mark it as Urgent. When I asked how long ‘Urgent’ was at the Lyell McEwin, he replied “Oh, two to three months”. And this set the scene for the next half year and more.

We decided that waiting around for that length of time, worrying about what is going to happen next was a waste of time and so we packed the caravan and headed for Far North Queensland and Cape York. At Eromanga in Western Queensland I switched my phone on to make a call and received a call soon after. It was my Doctors who wanted to see me. When I told her where I was she was most indignant that I could not do this but I insisted that there was nothing to gain by sitting around waiting for a call. Three months later we were back home again to start the rounds of doctors appointments and procedure that I had to endure

To put all of these appointments into perspective I need to tell you that we live 230 kilometres from the hospital

First up was a ten minute appointment with the Registrar of the Urology Department

Then I received two letters a week later. One for a Cystoscopy Procedure and another for an MRI of the lower bowel area. A Cystoscopy is when a small tube with camera is inserted in the penis pipe and the camera then tells the viewer what is happening inside the bladder.

The first time for the Cystoscopy Procedure we were just 30km short of arriving at the hospital when they rang to say that the specialist was sick and that they were resheduling the appointment and would send me a letter. After two weeks I rang to find out what was happening and they very apologetically made another appointment for me. In the mean time I came down to the hospital for the Lower Bowel MRI. That result was not conveyed to me until four weeks later!

Having a young female nurse handle my private parts with such competence was something else to get my head around but I survived the feined embarrassment. A thin tube with a miniature cameras head was inserted into my urinary tunnel of my penis. The Cystoscopy showed a large tumor the size of my thumb inside my bladder. Then I had to come down for a pre-op consultation and saw various nurses and  a very nice Anaesthetist. We agreed on a lumbar injection to deaden the lower half of my body while keeping me conscious. So on 7th December 2016 I went in for a Cystoscopy and Turbt,  as it is called, to remove the offending tumor. Another male anaesthetist with a heavy South African accent proceeded to give me an epidural lumbar injection. After 7 attempts he gave up as he could not penetrate the calcified bone joints to get to the nerve and so I had to have a General Anaesthetic.

I woke up in a ward with three other old blokes, one being Vietnamese and not speaking much English. He was, however, in good shape for a 96 year old. The operating doctor came by and told me that my bladder has been scraped clear of cancer but that the cancer was the aggressive type and that it was possible that there could be some remnants left in the bladder wall and that the specialists would have a look at the procedure at a meeting at the Royal Adelaide Hospital and that they would get back to me. He told me that I would be kept in overnight and that I could go home the next day.

At this juncture I had a catheter attached to my bladder and in the morning two nurses came by to remove the catheter. They were rough and hurt me somewhat. I went and had a shower and then after I was dressed I got up to do something and my walker slipped from underneath me and I fell forward. The next thing I received a needle jab and it was Goodnight. I remember having severe pain in my back and kept on trying to get up to alleviate that pain but  a nurse kept on pushing me back into the bed. Man, they pumped me full of drugs. Told me I had kidney failure and all types of other things. Kept on asking me if I was in pain while Endone and Oxycontin were used liberally. By the third day I started weaning myself off the drugs refusing to take them. On the Sunday I was wheeled out of my room to an x-ray machine and had a special x-ray done of my lungs. They said my lungs were damaged and I said that I knew that but why the x-ray in the first place. “Oh you have been coughing”. I retorted that I have not coughed in years and I pointed to a nurse who was coughing, not me. They became very embarrassed a quietly disappeared. On the Monday I agitated to go home and the hospital agreed to transfer me to the Peterborough Hospital by ambulance. On Tuesday I vacated my bed and the nurses ordered an ambulance for me. This was at 10am. By 3pm nothing was happening and so I asked what the go was. The nurses station became a flurry of activity and not long after they asked if I minded going in a Hire Car. I agreed and my transport arrived at 5.10pm. A stretched limo Black BMW to take me to Peterborough. It was the talk of the town for a while. I received excellent care at the Peterborough Soldiers Memorial Hospital and was released to go home on Wednesday evening

And then the wait began to see what the specialists have come up with for further treatment. Christmas and New Year came and went. On 16th January I received a specialists comment to my condition via my Doctor and a call from the Urology Department to say that I will be in consultation with a Specialist soon. But nothing happened after that. Then I had my now new doctor intervene as she had worked at the Lyell McEwin and knew the ropes. The result was that I was to have a meeting with the Registrar on 21st February 2017. So everything seems to take two months or more at the Lyell McEwin.

In the mean time I had a biopsy done on a dark blotch on my left arm. It has been sitting there for a number of years now and then I imagined it started to grow. The biopsy indicated that it was a malignant melanoma but that the finding was inconclusive so a new biopsy will be performed on 23rd February 2017 to find out the real truth.

I am reading web pages on the removal of the Bladder and/or Radiation Treatment and Chemotherapy of the Bladder none of which sound very exciting. Where is this going?
I hope I get some answers on 21st February…………………

In the mean time I try not to think about it but it does sit there in the background. We all know that life is terminal. It is just the date thereof that is unknown. Many humans to not even make it to 50 years of age and so I a grateful to have lived into my early 70’s and to have been able to see the world evolve over the time from the mid 1940’s into the early part of the 21st Century.

State of health update: 21st February 2017
 
I saw Doctor Hoffmann,  the Registrar, Urology Department, Lyell McEwin Hospital in Adelaide today.
 
My bladder cancer is aggressive and in the wall of my bladder and also possibly in the fat lining of my stomach
 
There are three options I can follow
 
1. Have bladder removed. It is a 5 hour operation. Complications are probable but not definite. It is a very traumatic operation to endure. Then that will be followed up by Radiation therapy. Outcome possible extension of life for 5 years but nothing is certain. I will also need to get around with a bag strapped to my body for urine excretion.
 
2. No operation but Radiation Therapy Treatment over the next 12 months. Outcome possible extension of life for 5 years or more but it depends on many factors and so nothing is certain. Chemotherapy is not an option as explained to me
 
3. Do nothing. Outcome possible extension of life for 24 months maximum. Life will become very uncomfortable after 12 months and further on.
 
I have chosen Number 2 for a number of reasons but most of all that I do not relish the trauma I will have to endure at my age for numbers 1 and 3
 
I shall be having a consultation with the Radiation Specialists within 2-4 weeks. That is the way it works here
 
So while there is nothing to cheer about, I feel happy now that I have chosen a path into the unknown future
Update 22nd February 2017.
Doctor Hoffmann, the Registrar at Lyell McEwin Hospital rang me in the afternoon a bit apologetic stating that I will need to have Chemo Therapy after all, most likely by way of injection. This will be to combat the cancer coming back again. This again is a different department so I will need two separate appointments
Second biopsy on my left arm came back negative. Dr Sims took a large piece of skin off me that required 7 stitches which came out again on 2nd March and healed by 9th March
I have received notification that I will be seeing Dr Scott Carruthers for Radiation Therapy and Dr Patel for Chemotherapy at the Northern Adelaide  Cancer Centre on 9th March

Update 9th March.
I had Round 1 of setting up for Chemo and Radiation in Adelaide and including a precise CT Scan. It was a big day and my mate, George, who was visiting from Darwin,  accompanied me in what must have been a boring day for him. He did have a good book to read however. I was pretty tired by the time we got home after dark, but I did drive all the way.

I will have two bouts of week long Chemo infusion but I will be free to move around. So on 27th March I commence Chemotherapy Treatment for one week and on 4th April I start with 15 minute a day Radiation for 6 weeks. The second week of Chemo comes up in week 4 of the Radiation Treatment. We have booked the van in to Windsor Gardens Caravan Park from 26th March until about 18th May. It is going to be a 40km drive there and back to the Lyell McEwin Hospital each day but that is our only option that gives a modicum of freedom. There are rooms and units available at two suburbs in the city especially for cancer patients and owned by the Cancer Council of South Australia but they are even further away from the Lyell McEwin Hospital.

By the time that is done it remains to be seen what happens next. I am staying positive and hoping that that will help with my recovery and that I will be able to squeeze a few more years out of this body

Update 19th March.
We have a week of reading all the paper work given to me pertaining to Chemotherapy, Radiation Therapy and the side effects. We also have a week to set the van up with all necessities for living away.

26th March

Well, tomorrow I start 7 weeks of Chemotherapy and Radiation Therapy, which will hopefully kill all the Cancer cells in my Bladder

The Chemo will be infused into my bloodstream for one week only.
Then I start Radiation on the second week for a total of 6 weeks.
On week 4 of Radiation I will also have another 1 week of Chemotherapy

I have done a lot of research with the material given to me by the Oncology Department of the Lyell McEwin Hospital and on the Internet. Each patient reacts differently to the two therapies and each therapy is done differently according to the patients condition

It remains to be seen how I will be affected by the therapy

Judith, my best friend and partner for the past 48 years will be accompanying me when necessary

28th March 2017

Yesterday was supposed to be the start of my treatment but due to monumental stuff-up by the Northern Cancer Centre, part of the Lyell McEwin Hospital, treatment won’t be starting until next Monday 3rd April ( the details of this will take more than one page to list and the person to blame went on leave yesterday….lol ). It is enough to make one angry…..but I just shrug my shoulders……

Incompetence springs to mind and I have to rely on this mob for my health and well- being!

What I did get was a  tube that follows along a vein for 57cm from my arm to my heart where the medicines will be infused for 120 hours of next week. The tube will stay in for the duration of the treatment. This was done under the same conditions of having an operation where the doctor scrubs up and the area affected is isolated

So after I get a new dressing on the insert today, we are going home and will be back in the city next Sunday evening. We are leaving the van and one car down here in the caravan park

Before we left for home I had an audience with the Registrar of the Oncology Department, Karen, and received an apology for what it is worth.

Friday 31st March This morning my urine overnight has the dark colour of blood and so there must be some haemorrhaging inside the Bladder.

Why has it taken 11 months to get this far? I realise that as a Public Patient I have to wait my turn in the queue. But why does it take so long? I am going to write to the head of Oncology and ask the question. ( I did not write a letter in the end deeming it as a waste of time ).

Sunday 2nd April. My urine has cleared up. My walking seems more fluid but I do remember taking an additional Lyrica 300mg pill. I am still on my Walker however and that is probably not going to change.

 

Day 1. Monday 3 April. My first sensation with Chemotherapy. I have a bottle attached to me for one week. The bottle works on body temperature and infuses Fluorouracil in to my bloodstream via my heart. I carry the bottle in my shorts’ pocket.
Day 2.  I am feeling good after a shower and breakfast and 2 trips to the toilet. Information supplied suggests that I may get diarrhoea. Start Radiation Therapy today. Wearing Men’s Pads for the first time today

Hooked up to Chemo bottle

Hooked up to Chemo bottle

 

 

 

 

 

 

 

.

First day of Radiation. All the nurses are very nice, one nurse looks just like my late Mother-in- Law. You have to lie very still and it can be uncomfortable. The process takes about 20minutes all up.  15 minutes of organising and 5 minutes of radiation

 

Radiation 1

Radiation 1

Radiation 2

Radiation 2

Radiation 3

Radiation 3

 

 

 

 

Photos by Florence

 

Day 3. Felt a little bit nauseous earlier in the day. But after ablutions, shower and breakfast I am feeling good if sleepy. Yesterday we bought penis pads for insertion into underpants as I often have little leaks. It is a bit cumbersome but I will use them for the week and then see again. Information supplied by the Cancer Council states that I may get diarrhoea. As I am taking other pills for back pain that bind me up the diarrhoea is not happening, which is a blessing. Maybe it will come later. Radiation at 12.25pm. Judith has gone bargain hunting

Day 4. Feeling better each day. Had to have the PICC taped up again as the connection had become sloppy. Nurses told me to go to the toilet to empty bladder and rectum. Easier said than done. Jude and Blaise went home in the MUX. Took two sachets of Macrovic to lighten up the bowels.

Day 5. Nurses  now worried about the rash in my groin which is as a result of a Fungus I have been carrying around for 6 years. Still no toilet results. Some results came in the evening. Took another sachet. Hope we get more fluid movements soon.

Day 6. Feeling woozy this morning. Prepping the van so that I can leave it for the weekend. Chemo therapy bottle gets disconnected at 2pm and then I have a two and a half  hour drive home.

I had the Chemo bottle removed at 2.15pm today. Had to go to Ward 1 D…….down this corridor to the end, turn left….down that corridor for a looong way, then veer right and then turn left. This hospital is like a Rabbit Warren. I was pretty exhausted when I got back to the car an hour later. I still have the PICC in my arm and the pipe in a vein to my heart. This will all come out at the end of my second Chemo session which starts after Easter on the 24th

Drove home in 2 hours and 10 minutes listening to TripleJ Radio and had the doof doof on real loud whilst sticking to all speed limits. Pretty tired tonight so will turn in early

Day 7. The weather turned cold. Judith was barking this morning so I ordered her to stay in bed but that is easier said than done. I accomplished some computer work, transferring documents and saving them to a new external hard drive. Wrote letters and sent PATS forms off. Washed my groin area with a salt solution to try and curb the incidence of the fungus that has been living there since 2011. Turned in at 9.30pm  but sleep was only in two hour sessions as that is what my bladder allows. And if I drink two mouth fulls of water then it reverts to a one hour sleep session.

Day 8. Groin fungus is rife and wet this morning and will need another salt dabbing. I have to see the nurse again this morning. Judith is staying home while I go back to the caravan in Adelaide for this short week before Easter. Next Radiation appointment is at 11.50am and an appointment with the head of the Urology Department at 2.10pm to check on progress I guess. Yesterday my radiation went OK and also the meeting with Dr Brien at the Urology Department where we talked about how I was progressing with my treatment and how things may pan out on the months ahead. Other business dealings dragged on at Munno Para Shopping Centre and I only arrived at the caravan park at 5pm.Yesterday my radiation went OK and also the meeting with Dr Brien at the Urology Department where we talked about how I was progressing with my treatment and how things may pan out on the months ahead. Other business dealings dragged on at Munno Para Shopping Centre and I only arrived at the caravan park at 5pm. My radiation went OK and also the meeting with Dr Brien at the Urology Department where we talked about how I was progressing with my treatment and how things may pan out on the months ahead. Other business dealings dragged on at Munno Para Shopping Centre and I only arrived at the caravan park at 5pm.

Day 9. Cool night. Another two appointments today which will take up the whole day in the Northern suburbs. I have some new medicine for the groin fungus and will follow instructions.

My Mobility Issue resolved.

My Neurologist at the Lyell McEwin Hospital also, gave me the answers I have been waiting 3 years and 8 months for and after seeing various Doctors and Specialists.

1. My fall in 2013 dislodged soft tissue in my neck which in turn hit the spinal cord and damaged it. The tissue between the vertebrae then retracted. One can see from the MRI where the damage was done. This in turn damaged a nerve which operates my left leg and that is why I drag my leg. Is it operable?…..maybe, but he states I might then be permanently paralysed….Is it of benefit to me have an operation = No

2. My back has Spinal Stenosis, which is damage to the soft tissue between the vertebrae due to car crashes in 1980 and 1981, one not my fault and the other my fault, and the onset of older age in 2013. Is it operable? Probably but it will be of no benefit if things go wrong as with nerve damage at an older age. Will it be of benefit to me = No

Answer: Keep on taking your painkillers and keep on moving

Back to my cancer reports;

I had my Radiation and also spoke with another doctor about the Fungus and told him that I am experimenting with different kinds of gel and will report back. The staff are nervous of any changes to my skin in the radiation area

Day 10. The phone rang at 7.30 as I had slept in and as I regularly ring Judith at 7am, she was getting worried. I returned the call. I have a midday appointment today so I will do some housework to start off with. I am feeling relatively good today. I was lucky to get a disabled parking  spot right outside the Cancer Clinic and so I did not have the long walk from the car park. I was in and out quite quickly and back on the road back to the caravan park where a prepared meal had defrosted and all I had to do was to put it in the microwave and push some buttons. Thanks Jude. Tomorrow afternoon I drive home for the Easter Long-weekend and make for the Boro.

Day 11. Slept most of yesterday arvo then watched telly till 10.30 and had my usual sleeps until 6.30am when I rang Jude for her morning wake-up. I am feeling a bit woozy today but otherwise good. Cleaning up behind me as I take stuff back home for the 4 day weekend. Radiation at 12 and Chemo doctor at 2 and then home

Day 12. Easter weekend. Slept in late. Body especially knees very stiff and sore. It is muscular pain. I had a rush of toilet visits and seem to have cleared my bowels.

Day 13. Feeling a bit better today.Went for a drive with a friend out to one of the stations nearby and did a bit of sluicing in a creek looking for colour

Day 14. Another relaxing day. Walking getting worse

Day 15. Today my back is really giving me a hard time. No pain but no strength at all. I am now literally a cripple and walk bent over sideways. We dropped the Xtrail off at a friends place as his brother -in-law is buying it. We have three lots of friends call around. Jude went and collected her paintings from the Art Prize as it is winding up today.

Day 16. We drove to Adelaide in the morning as I had Radiation at 2.20pm and PICC change of bandages at 3.30pm. Then on to the caravan at Windsor Gardens.

Day 17. Aches and pains this morning ….all skeletal…..should be OK when I warm up although the weather is still quite warm deep into April. Have lost some taste buds but generally taste is still OK. Radiation at 1.05pm. In other respects we had a good day solving some money matters with registration of vehicles. When the mood is good it helps with the treatment.

Day 18. Up just past 6am. Feeling quite good this morning. I sleep well in 2 hour shifts as my bladder controls the urine excretion.  Some rain about. Still reasonably warm. Radiation mid morning. I had a blood samplw taken as I start Chemo again next Monday. Felt crook all afternoon so had a lie down. Perked up in the evening.

Day 19. I discovered why I was feeling crook all afternoon. I had forgotten to take my morning pills yesterday. I discovered this in the evening so took the morning dose anyway. It is interesting how dependent one becomes on the regular pill. It rained last night. After Radiation session we are driving home as we have some business to attend to. I was out of the Radiation Theatre by 12.50. We had done our other jobs in the morning before radiation and we were on the road by 1pm. I drove all the way as Jude prefers me to drive as she gets nervous with me as a passenger. It isn’t what I say, it seems, it is what I am thinking. We has lunch and the lovely Bakery Cafe at Riverton and had two relief stops on the way home and clocked into Peterborough at 4pm. Went to sleep by 10pm but it was a rough night with recurring dreams and leg cramps and the last thing was the feeling of something hanging on to my foot. But this was at 6.30am and Blaise was up and lying on my foot ! Over the past 6 years I have had a fungal infection in my groin which comes and goes. I have seen 3 different doctors about it but to no avail. No one has an answer. The nurses at the Cancer Centre suggested a Gel which did not work either and the seeing a different doctor about my progress with the radiation and mentioning this to him he stated that the area must be kept dry as the fungus thrives on heat and wet areas. So off to a Chemist I go and there I had to ask what to do mentioning the embarrassing places to a young lady chemist and she suggested a Spray on Powder.  Tolnaftate. And it seems to be working. Hope so!

Day 20. Jude did the washing. The Datto would not start. Will need a new starter motor I think. Jude then cooked a beautiful lunch and we slacked off for the rest of the day. Cramps have gone and I am feeling OK.

Day 21. Sunday and we left home around 10am and did a slow drive back to Adelaide via Clare and Auburn. We had a great lunch at the Sir John Franklin Hotel in Kapunda and then drove to Tanunda, Williamstown, Chain of Ponds and a very twisty road back to our caravan at Windsor Gardens. It is a very pretty drive, mostly through wine lands and picturesque little hamlets or small country villages. I drove all the way but was tired by the time we got back to the van. Had an early night and slept through most of MKR !

Day 22. I had my new bottle of Fluorouracil attached for the next week of Chemotherapy. Felt a bit woozy to start with but came good after about half an hour and then took over the city driving again. After my Radiation session we made for Modbury and the Service SA Centre where Judith handed in her  Vehicle SOLD paper. I went to sleep in the arvo and woke up to have a bite to eat. Another gourmet meal from my mate. Watched some telly including MKR and the slept my usual sleep in two hour shifts

Day 23. Tuesday and ANZAC Day so a public holiday and a celebration for those who are interested in war. Feeling a bit stiff in my back this morning. Chemo is going OK and I feel neutral. A slow day ensued with reading novels and bush ballads. The weather chased us inside early with some showers about,

Day 24. At 12.45am the wind picked up with stormy weather about. The annexe was flapping rather hard and I decided to fit the annexe flappers, clips that hold the annexe steady. To get them I had to wake Jude who was not amused at my antics. However she produced the flappers and then took Blaise for a walk whilst I fitted the flappers. Feeling good this morning but after wearing closed in underpants the heat build up in my groin produced the wetness again. So out they go. A quick spray and the itch settled down. There was some confusion about my Treatment for the day as we received a phone call at 10.00am whilst driving to the northern suburbs to ask where I was. I knew I had to be there at 11.00 am but they thought it was 9.30. Anyway we did the treatment at 10.30. The staff were concerned that I had n0t cleaned out my bowels as they can detect gas (commonly known as a fart when it exits) and some solids in the rectum cavity. I explained that I had purged my bladder and rectum 20 minutes prior to the scan. I could feel that gas wanted to exit but it was physically not possible at this time.  Then we did shopping at Aldi and then home. Jude went and had a haircut. Blaise and I stayed in the van. A cool drizzly day.

Day 25. I had agreed at Reception at the Cancer Centre that I would swap times with another lady as she was unavailable early in the morning. So we were out of bed early and got there in good time  after the usual morning stuff. Then I went to the Service Centre in Modbury and I renewed my Disabled Parking permit, then shopping and then home.

Day 26. Another drizzly day. I am feeling good coming in to the last 36 hours of my Chemotherapy Infusion. I have not encountered any of the side effects that have been listed, so far. Radiation was good and I had some banter with the staff as usual. Afterwards we went to Beacons Lighting and found a new light for my desk. Then Super Cheap for car smellies and Dan Murphy’s for a wine cellar top up. Its going to be a  late lunch.

It was a late lunch and I had two glasses of Sauvignon Blanc which put me to sleep fpr the rest of the day waking up in time to see the early evening TV shows that Jude follows. We skipped supper but I had some slices of toast and Vegemite Cheese at around 10pm.

Day 27. Blaise wakes Judith up every morning around 5.20am by pummeling her paws on on her arm. Judith gets up, does what she has to do, dresses warmly and takes Blaise for  a walk outside the caravan park. At home Blaise has a Doggy Door so getting up is not necessary. I rise, do what I have to do, take my morning medicines, make the coffees and get on the internet to check for emails, the weather, the bank and Facebook!

I am feeling good this morning despite my mobility problem in the early mornings when my knees buckle when I put weight on them. I am going to see if I can do some sort f exercise to build up leg muscle strength.

Today the Chemotherapy bottle got removed from my arm and Monday the PICC and vein pipe will be removed. That is the end of Chemotherapy and of  Fluorouracil infusion which eases the Radiation burns to the cancer cells on the walls of my bladder.

Day 28. Sunday and a free day. Groin fungus irritable during the night. Used spray-on powder twice. Feeling good this morning especially after being freed from the Chemo bottle. We went for an exploratory drive in the Adelaide Hills after breakfast and got home at 3.30pm. It was a lovely drive over twisting roads and hairpin bends through beautiful autumn colours of vineyards and fruit farms. MKR Final cook-off

Day 29. Monday May 1. Weather forecast is for rain. Feeling good. Radiation first and then my PICC and line came out. I did not feel a thing. 14 days of Radiation left. MasterChef starts!

Photos by Heather.

Day 30. An afternoon appointment. I had to see one of the Doctors too. He said, ” Good to see you around” and I said, “Me too” and we both burst out laughing. I had to be weighed. Wow 131kg.”…sheesh ! Going to be diet coming up, soon.

Scan seemed to take extra long today and I fell asleep and dreamt weird dreams. The radiation left my skin feeling hot.

Day 31. Feeling OK  but walking with difficulty. Groin fungus is back and making scabs. Will see if I can get appointment with my doctor on Friday. Radiation is at midday. The days of winter are setting in and the temperature is dropping below 20C. After radiation we went and organised some new tyres for the MUX and fitment tomorrow. Then we dropped in to the Bookworm Shop in Valiant  Street at Holden Hill. A seriously full Bookshop. And there we discovered some Di Morrissey books. As we had decided to buy her whole collection we found more to add. But in the mean time I needed a toilet and the shop owner gave me directions but they were wrong and I got lost and so as the situation was becoming serious I high-tailed it back to the caravan about 4km away. Just made it and then had to ring Jude t find out just where this shop was as we do not know the suburbs. Good fun.

Day 32. Winter is here and we slept with the electric heater on for most of the night. Feeling good this morning. Radiation at midday. Well sort of/ They were behind but I was out of there by 1. Later we had new tyres fitted to the MUX and then we hit the traffic in to town after 3 arriving at the caravan at 4pm.

Day 33. 8 am appointment this morning by request so that we can get home and do some business. I also have a doctors appointment at 3.15pm. Left my medicines behind, eh?

Day 34. Painful rise. Now I know why I take painkillers. Drive to Burra to see Antique Fair and do Whole of Town Garage Sale.

Blaise was going barking mad today

First of all my medicine box was left behind in the van. So by midmorning I was stressed out being without my pills since the day before and had some near misses going to the toilet.

On our way back from Burra I once again was uncomfortable and had to pull into a small forest at Farrell Flat. After reorganising my life we hit the road with me still driving and getting crankier. So I took off a bit suddenly and accelerated to get up to speed on the highway. I noticed a door light had come on and pulled over to fix it. I thought that it was the rear right passenger door. No light was still one. So Jude got out and said through the open back door “There’s no dog here” Nothing else had fallen out.

We sped back to Farrell Flat at around 150kmh but couldn’t see Blaise on the highway but found her where we had turned in to stop, befriending a man who lived there. She hopped in to the car and did not bark for the rest of the trip.

Near Tarlee I gave the wheel over to Jude and we made it back to the caravan just in time for the toilet and my pills and a rest

Blaise is sulking on Mum’s bed….LOL

I have taken my pills, had a mini sleep and a bit to eat. Feeling better now

Day 35. Sunday. I forgot to add that when back at the van yesterday and upon exiting the toilet, my shoe somehow hooked on to the door frame putting me off balance and down I went like a ton of bricks. It hurt for a while and I will most likely have some bruises

So trying to work out what happened I found that my usually swollen leg is now almost back to normal size again and that pair of shoes are loose. So I think that that is a plus for the radiation.

Feeling good this morning after popping pills and taking anti-biotics.to clear up another affliction. It never seems to end, I had a good day today. I have been feeling good and walking better. A friend of a Facebook friend came to visit me. Les Skinner is an avid bush walker and desert traveller and we have much in common. So we had a cuppa and munchies provided by The Cook and an hour long chat while Jude disappeared into the shopping centre nearby

Day 36. Early rise at 5.45am when the furry child needs to go for a walk. Feeling good this morning. Had a glass of wine with dinner last night that resulted in 5 P in the bottle events. But I slept well. Fa bit woozy early on as I took the last of the anti-biotics and that made me crook. Radiation in the middle of the day. Waited an hour for service. Got cranky but joked with the staff and all settled down. Feeling good tonight.

Day 37. Another early rise. This time at 5am. Had a disturbed night with waterworks every hour due to a wine with my meal. Apart from that I am feeling good  this morning. Did some shopping and buying a 70th Birthday present. Blood test after lunch, then radiation and then the Doctor.
A good day.

Day 38. 5am rise again. I slept 5 hours straight but that took me to 2.30am. Then I dozed for an hour and then I got my phone and went on Facebook for an hour and then slept half an hour before Blaise woke us up again for walkies. Radiation at 11.10am. Feeling good despite the lack of sleep. Radiation was late again but I let it  slip by. We drove to Gawler to talk Solar with a panel supplier. He was not in but we received some paperwork and a promise that he would call. Then Munno Para to buy shoes for me and to have some lunch and then home. Feeling good but a tad tired.

Day 39. Blaise slept in this morning and we all went through to 6am. I had my normal nightly 2 hour sessions. Feeling good this morning but had some serious leg cramps last night. May be the two Tim Tams I ate before bed? Radiation and Doctor Patel after 1pm. Doctor reckons that I look good and that my blood count is good too. He will need to see me in August again after I have been scanned. Bought new shoes after driving the shoe sales lady nuts!

Day 40. Up before the magpies in the dark and after doing all the morning jobs and following up on this and that we got away at 7.15am for my Radiation at 8am and a car wash thereafter. We had a pie at Tarlee and arrived home before midday. Then there were various jobs on the list to do. Its quite cold in Peterborough and in the afternoon I chose to wear slacks again

Day 41. Upset tummy last night but that was more about eating licorice. My bed is warm without a electric blanket. In bed early but many wee dribbles though the night. Brain was working overtime and so I got up at 4.30am and went on the net. Fungus still prevalent and now in my bum-crack too. Not sure how we are going to fix it. Today is party preparation time. Food for the birthday tomorrow is catered for. We are only having a few friends around. Today we had visitors and Jude cleaned the BBQ area and patio and the two of us blew up balloons and put up bunting

Day 42. 14th of May and Jude turns 70! We had a lovely day with friends coming around to celebrate Jude’s birthday. I had organised for Julie Atkinson o cater pizzas, pavlova, birthday Black Forest Cake, fruit salad and Ice-cream. 13 humans just about polished the lot. Birthday started at 11.30 and ended at 3.30 and a jolly good time was had by all. After doing a million dished I ended up falling asleep in front of the TV

Day 43. Woke up with a real pain in my back but after doing some exercises and taking my pills I came good. We tidied up the house and left Peterborough around 10.30 am and then drove all the way to the van, unloaded all the gear and then drove back to the hospital. One of the radiographers has been reading my website and asked questions. Back home after 4 for munchies and a glass of wine outside under the awning

Day 44. Feeling better this morning. Radiation after lunch at 2pm so will go do some jobs at Munno Para. Saw Dr.Ben. Lovely young bloke. So enthusiastic. I told him that the Radiation seems to have shrunk the bloated left leg. He was amazed. Not so cold in town. Cloud cover and rain expected. Relaxed back at the van. Early to bed and I fell asleep during Masterchef and woke up during Jenny Brockie’s program on Rescue Paramedics.

Day 45. It rained during the night. Very stiff this morning and back hurting in early morning as do my knees. Have to move back around to warm up and wait for pills to kick in. Need to talk to Doc about painkillers. There was a small bingle in front of us on the way in. We got to the hospital in time. Radiation at 9am this morning. Rest of day free. Went to Aldi and fund some biskuits and Truffles as gifts for the Nurses. Drove down to BCF to look at stuff for camping but came away without anything. We had lunch at home and Curry and Rice which was delicious. Loafed after lunch. We had a shower of rain and snoozed the rest of the day away. Feeling quite good

Day 46. Radiation in middle of day again. Jude did a week’s washing and when we got to the Lyell McEwin Hospital I was called in just as I sat down on the waiting room. After Radiation, we went to Munno Para to conclude some Telstra business which did not eventuate even after waiting for some time to be served. On the way home we bought a PLB (Personal Locator Beacon) as insurance for our trips out in to the desert regions and some car polish for a job I was working on. Feeling good tonight. A bloke we know from Broken Hill came to visit. He is deaf so he shouts all the time. Luckily he didn’t stay long

Day 47. Feeling good this morning. Blaise slept in so its a late start to the day. Second last Radiation Day. Overcast with drizzle here and there.

Got our money back on PLB and then went looking for others. Seems like an EPIRB  with GPS is more what I want. Same sort of money. Still looking.
 
Had a good Radiation session with songs and jokes with the Radiation technicians. I am going to miss them.
Drew no joy at Telstra but received late afternoon call from Telstra with better news and a promise on Satellite phone connection. Jude went to Op Shop and bought a book of Pam Ayers Poems
. Traffic hideous and especially in large car-parks and I nearly swallowed a Suzuki. Doing stuff over the weekend but not going far
 
Monday is last Radiation and I am feeling surprisingly good. Quite against the norm and as the Doctor said to me, “A rare occurrence”
Day 48. 4am disturbance with Blaise jumping from bed to bed. Turns out it was the beep of the Fire Alarm Battery going flat. Jude took her for a walk anyhow made coffee took the battery out and we all fell back into a sleep. more hunting for stuff today. Feeling good this morning despite nightly disturbance. Did shopping of needed items from BCF store. Feeling whole body skin burn this evening. Can’t work it out
Day 49. Sunday. Body skin burn gone for the moment. I must have touched a nerve somewhere. However, groin fungus has re emerged. Groin very wet and with skin abrasions I can feel but not see. Sitting over electric heater to see if I can dry it out. No matter what has been tried the fungus is winning. Have tried Psoriasis creme, Salt dampener, Achilles Heel Powder, other cremes, Spray-on Tinaderm powder. Otherwise, I am feeling good. Overcast but predited to be sunny later on.
Day 50. My last day of Radiation. 9.45 and then a de-brief by Nurses afterwards. Then it is 6 weeks till the next appointment which I suspect is an appointment to arrange another internal test to see how the treatment has killed off the cancer cells. Generally with my type of cancer two months is allowed for the treatment to take effect.
Visited the toilet no less than 10 times yesterday evening and through the night and I did not have must liquid intake apart from coffees and cool drinks.
I must say that I am a bit tired today.
Although I still have a way to go with my cancer evolvement, I am going to shelve daily writing until we start back at the hospital in July
Thank you for following my journey of discovery with cancer so far. I hope that my blog might be of help to someone out there.
UPDATE July 2017
The specialists agree, although they cannot say 100% for sure, that my Chemotherapy and Radiation Treatment has been successful mainly due to the fact that I have not been affected by the treatment and that I am looking well. have a sun tan and have gained weight which is against the norm.
The process now is going to take another 9 months of scans. It takes that long for the body to recover from the treatment to make doubly sure that the cancer is gone
So we are having a wine and snacks as a celebration tonite in the motel room while it is bucketing down outside
Tomorrow I have a scan and then we can go home. I will only know the results of this scan when I see the Oncologist on 3rd August 2017
The News of 3rd August 2017 could not be better. I am completely clear of cancer cells. I even saw the MRI scan myself. I am over the Moon and so are my friends. It is such a relief to know that I am clear. This is not to say it won’t come back BUT it is to say that I am clear for now
The bladder is acting normally and has settled down to 3 to 4 urination per night. The bladder however becomes very active if I consume cold beer. The more I drink the more it develops urine.
So this chapter of my life I now closed and I can concentrate on my other ailments….LOL
I have bought myself a Hospital Bed which is electrically operated. Makes me sleep well.
9th January 2018 I have been given the ALL CLEAR by specialists. Next check-up is in September 2018
7th June 2018 (on my birthday) and I have another Cystoscopy this time by Dr Hoffman, Registrar. We see stuff where the tumor was and it looks a bit like an under water scene with seaweed waving with the intrusion of the camera. I ask “What’s that?” and Hoffman says “I don’t know”. Well, for a Specialist, who has done hundreds of these Cystoscopies, you don’t know? It turns out to be 3cm of Necrotic tissue. He is a bit gruff with me and says I will have to have my bladder scraped again. I am sent down to the Bookings Nurse who says she has a full diary and I say leave it towards the end of the year. We drive home.
Pack the van and head to Darwin. We get as far as Alice Springs and we decide to come home again as I am having difficulty getting in and out of the van etc etc. We drive home to the cold
Some weeks later Dr Hoffmann rings me and I say that I am not happy with another scrape after the fiasco of last time. He is annoyed but I tell him ” Don’t call me, I’ll call you”
Today 29th August, the Peterborough Clinic rings me to make an appointment to  discuss a letter from Dr Hoffmann. Made an appointment for 2nd October with Dr Jackson. I wonder what he wants. Will find out in October, no doubt!
I am having another CT scan in September, blood test and interviews with Drs Patel (Oncology) and Carruthers (Radiology) to find out real situation.
But before that we are going to Melbourne to celebrate Judith’s Uncle Bob’s 90th Birthday. Should be back home by the 20th.
27th September: The CT Scan shows that the outside of my bladder, kidneys, liver, intestines and all other manner of innards being free of cancer. No doubt a healthy diet and an extremely positive attitude together with the residue of chemotherapy and radiation has done the trick. In the mean time I was shown a book on the net by Dr Barbara O’Neill, Self Heal by design, where she presents a diet where no sugar is present. Dr Dainik Patel has talked me in to having my bladder scraped again and had sent an email to Dr Hoffmann telling him to make an appointment for me. BUT, I changed my mind and when the anaesthetist rang I said No I wasn’t playing ball. So on Thursday 11th October the Doctor rang me and after a long discussion I said that I wanted to try out something else and that I will agree to a cystoscopy and turbt in February. In the mean time Judith is rising to the challenge cooking different foods as the diet excludes alcohol, sugar, sweets, chocolate, meat, dairy and certain fats. So I have gone cold turkey on my old diet. I am now in day 10 and I have slipped in smoothly eating the foods suggested and have no hunger pains I think that I have dropped 3 kilos.
I concluded the 6 week extreme diet without wavering and shed 10 kilos. I feel a lot better for it. Two weeks have passed by since then. I have had some naughtiness like a couple of glasses of wine and two beers, two cones of ice-cream and a dollop of honey over a plate of Weetbix. Other than that I am sticking more or less to the same diet with chicken once a week or a plate of pork and vegetables. I bought myself an Adult  Tricycle and carry frame and this is giving me some of the exercise that I need. The weather has been up and down and not really fit for Tricycle rides.
I seem to be gaining weight again, though, by being unsteady on my feet, it is difficult to get a proper reading. Now I have lost weight again. My back pain has increased but I take some extra Tramadol when necessary. The trike riding is going good. The Lyell Mc Ewin rang me to make an appointment for a look at my bladder and a scrape. I said No and they took me off the list. I feel that my diet is keeping me out of trouble. I have not taken any added sugar since October 2018. I do have a little bit of ice-cream once a week.
2019
At the end of February we drove to Adelaide for a CT scan and Blood test. Result will be consulted in Adelaide on 14th March.
I have been taken off the Bladder Scrape list at the Lyell McEwin Hospital. I just don’t trust them to do a safe procedure.

The oncologist told me that the scan and blood test showed no sigh of cancer. So that is good. The radiographer however insisted on a cyctoscopy.

After a good night’s rest I am feeling good this morning.
As I told you some weeks ago that I was clear of cancer, the doctors still had make doubly sure inside the bladder as it does not always show up on the scan
12th April 2019
At my previous cystoscopy in June 2018 there were some ‘unknown things’ (necrotic tissue) attached to the bladder wall and the then specialist, wanted to scrape my bladder and I refused as it had been done before and the thing I dread is them cutting the wall of the bladder and then I would have to wear a bag.
Instead I went on an extreme diet and cutting out added sugar from coffee and tea, and eating sugary items like jam etc This was on internet advice from a naturopathic doctor. 
Yesterday’s invasion saw no sign of the ‘unknown things’ (necrotic tissue) and there was only a small calcification bubble on the bladder wall. That is why a biopsy is needed. But I think that my special diet has assisted the disappearance of the ‘unknown things’.
On another note, I do not drink enough water. Years of driving around in the deserts taught me to survive on little water, but that may explain why the calcification in my bladder is there.
So next week I will be seeing a podiatrist here at the Medical Centre, Peterborough and a specialist optometrist in Port Pirie.
The podiatrist said that my feet were OK and she clipped my toenails.
The Specialist Optometrist said that I had Glaucoma and that I now needed to put eye-drops in every night for the rest of my life
One afternoon I had about 300 ml cool-drink Lemon, Lime and Bitters. My bladder reacted so that I had to relieve myself every 20 minutes. This went on until after midnight when it quietened down. The following day it resurfaced again for the morning and then settled down in the afternoon
Sunday 12th May. I slept in my normal 2 hour shifts and the 5am pee hurt. It hurt in the urine duct. I went back to sleep and just before Jude brought me a coffee the next pee felt as if something was moving down the duct. It came out and there was no more pain. I caught it later when I strained my urine through a chux rag and it was whitish and looked like phlegm. I am sure it is the salt bubble we saw there on the wall. I took photos.
I wrote to the Registrar at Lyell Mc Ewin stating that I will not need a biopsy
It seems that my bladder is aggravated by coffee, fizzy drinks and alcohol of course. I still seem to Pee a litre every night even if I have not drunk any liquid
since morning smoko. I think this is because I don’t get any exercise to sweat the water out of my body.
August 2019…My bladder continues to produce at least a litre of fluid per night irrespective of drinking lots of liquid or not. My weight seems to hang around the 105kg mark and I just can’t seem to get below that. The middle of September will mark 1 year without alcohol intake.
I had a bit of a elapse a few weeks around the end of August early September when I had a beer every day for 5 days but by the end of September I am again staying off the grog
Good news!
After Chemotherapy, radiation and my own ‘researched cancer-fighting diet’, I had to pass muster at the Urology Department. A scan earlier in last month showed that I was cancer free, in and around my pelvic system. I still had to have a look inside my bladder as scans can not penetrate the bladder wall.
Today, after a Cystoscopy, I am pleased to declare that I am now totally cancer free. Yay!
I resisted other Specialists who insisted on wanting to scrape my bladder again. I also proved that the near vegan diet that I followed for three months improved the health of my bladder tremendously and stopped the tumor from taking hold again.
Now I have to find a way to sort my back out

Being continued as things happen………

 

Posted in 4x4 Travel Stories, Restless.